Meds for Severe "D"

[whyclef]

I am undiagnosed, yet my symptoms point to unidentified Crohns. The three GIs I have seen all agree it is time for me to go to Mayo Clinic in Minnesota. I am scheduled to fly there on Tuesday Jan. 31st, see Dr. Loftus on Wednesday Feb. 1st and go from there.

The problem is that I keep experiencing unstoppable "D" that leaves in the bathroom without relief, severe cramps, and nausea. Yesterday afternoon the on-call GI doc had me take 10mg Vicodin, 25mg Phenegran, and Lomotil yesterday...that was after I had taken Robinul and Hyoscamine in the moring. Needless to say it knocked me out for about 19 hours.

Unfortunately, it seems like the Vicodin is the only thing that will stop the D. Yesterday was a lot of bile with burning on exit, so I will up my Welchol dose. I am fearful I will have trouble traveling to Mayo with three different flights to get there.

Does anyone have the name of another med that works to stop your D?

Is it risky for me to be taking pain meds to stop the D if this is Crohns?

 

[Sailorluna]

I am on lomotil and Welchol for D and have Crohns. I take 4 of each a day. Good luck with your trip. I hope you get some answers.

 

[mario]

Questran (Colestyramine) works really well for me 3 sachets a day, one before each meal.
I believe In the UK it's prescription only but i think you may be able to buy it in the US. Good luck

 

[ekay03]

Is it risky for me to be taking pain meds to stop the D if this is Crohns?[/B]

Some doctors think so and some not so much. If I were you I would take the pain med while you are flying so you wont have D problems. Do not take the pain med before the actual doctor appointment. The main problem w/ taking these meds is that you could be having a problem and you just wouldn't feel it.
Good luck at the mayo clinic

 

[rob101]

Could try psyllium husks (from health food store) to absorb the bile but dont take it at the same time as other medication as it can absorb that aswell.

 

[scottsma]

I find pysillium works well for me too.take it 2hrs before or after meds and drink plenty water in case of blockage.I know that might sound appealing given your present state, but it isn't,trust me.