- Joined
- Jul 7, 2010
- Messages
- 343
meds or no meds?
ok this may be long and rambling but i just want to get some different perspectives. my first doc did my colonoscopy in june and determined i had early crohns because i had tons of ulcers and he took 31 biopsies but they all came back "inconclusive". since then i have been in the ER several times and been hospitalized once. upon seeing a new GI he didnt think i had crohns at all. so he took me off the prilosec and the asacol and tapered me off of the prednisone which i finished two days ago. i was fine for a few weeks with just stomach pain here and there. but now the constant stomach pains are back and its like 3 times worse then it was before. the D has now returned everytime i try to eat something and the urge that "i have to go RIGHT now" is back. the D is back to being runny, my stomach hurts, im still vomitting. i had a CT scan that showed "slight thickening of the right colon". my insurance sucks and i can only have one colonoscopy a year, so i have to wait until jan. if i want another one. sooo now i'm wondering should i have even been taken off the meds? i'm having all the same symptoms as i presented with but now it just seems like its getting worse. i gained weight from the prednisone but now im slowly losing the weight because im afraid of eating because i know it will only make my stomach hurt and send me to the bathroom for god only knows how long. this is is so frustrating. should i look for a new GI? i feel like a test animal. i've had every scan, drank the nasty barium crap and had it in IV, blood tests and feces test. i feel like no matter how much testing is done they cant find an answer and think im crazy. all they want to do is give me pain meds and i wont take them because they make me super constipated and i have to be in MAJOR pain to break down and take half of one. sorry for the ranting. hope you guys are all feeling PAIN FREE.
OH and to add... when walking to classes at school (which are literally one building next to each other) i have horrible pain in my legs and it feels like my bones are hurting or something. its really weird.. i cant even walk to the next door building without having to take a rest
ok this may be long and rambling but i just want to get some different perspectives. my first doc did my colonoscopy in june and determined i had early crohns because i had tons of ulcers and he took 31 biopsies but they all came back "inconclusive". since then i have been in the ER several times and been hospitalized once. upon seeing a new GI he didnt think i had crohns at all. so he took me off the prilosec and the asacol and tapered me off of the prednisone which i finished two days ago. i was fine for a few weeks with just stomach pain here and there. but now the constant stomach pains are back and its like 3 times worse then it was before. the D has now returned everytime i try to eat something and the urge that "i have to go RIGHT now" is back. the D is back to being runny, my stomach hurts, im still vomitting. i had a CT scan that showed "slight thickening of the right colon". my insurance sucks and i can only have one colonoscopy a year, so i have to wait until jan. if i want another one. sooo now i'm wondering should i have even been taken off the meds? i'm having all the same symptoms as i presented with but now it just seems like its getting worse. i gained weight from the prednisone but now im slowly losing the weight because im afraid of eating because i know it will only make my stomach hurt and send me to the bathroom for god only knows how long. this is is so frustrating. should i look for a new GI? i feel like a test animal. i've had every scan, drank the nasty barium crap and had it in IV, blood tests and feces test. i feel like no matter how much testing is done they cant find an answer and think im crazy. all they want to do is give me pain meds and i wont take them because they make me super constipated and i have to be in MAJOR pain to break down and take half of one. sorry for the ranting. hope you guys are all feeling PAIN FREE.
OH and to add... when walking to classes at school (which are literally one building next to each other) i have horrible pain in my legs and it feels like my bones are hurting or something. its really weird.. i cant even walk to the next door building without having to take a rest
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