More then 1 in the family!!!!!

[worriedmominmich]

more then 1 in the family!!!!!

Hello every one. With the news that the 3rd of the 4 sister in law was diagnosed with crohns it got me thinking that i have never heard of one single family having this many siblings getting the same diagnosis in one generation ever. Two of the my sisters in law were very young when they found out and one over the tonight. now i look at my children and wonder if i have to worry that they will have to worry about this when they get older. We have already had the scare with our oldest daughter when she told us that she was bleeding last year which resulted in her first scope she is only 14 nothing was found . is there any research about how this travels from generation to the next what are the chances that my kids will get since almost all of their aunts have/had this. The diagnose has us all in aw right now we really dint even know how to react to this one right now.

 

[Kev]

Worriedmominmich

I know what you mean. After I was diagnosed, I researched and found that my biological mother (I was adopted at birth) and her other children all had crohn's. (well, the 4th is still unconfirmed diagnosis).. They (the 'experts') say there is a genetic risk factor, but it's only supposed to be 10%. I don't know what 'other' factors may have led to 5 out of 6 of my blood relatives (counting myself) getting this disease. We were raised totally separate and apart, and didn't know of each
other's existence. Now my youngest son is showing some troubling signs. He has
become extremely lactose intolerant (nauseau, heartburn, and diahrea, etc..). The 'doctors' haven't been able to diagnose it as yet (sounds all too familiar). The thing of it is .. is that I raised and looked after my sons by myself. 24X7X365 days of the year. Being a single parent is tuff, perhaps worse if you're a single dad with
sole custody.. Getting custody is extremely hard, keeping it is a constant struggle.
You can almost make yourself paranoid wondering how good a job you're doing. It was the hardest job I ever had, yet it was the best. Think I did pretty good too.
Now, this disease comes along, screws up my plans for after the boys were grown and on their own, worse still, it looks like it's hitting at least one of them..

The real torment? Not a single blessed thing I can do about it. Except hope & pray. I've talked to them both, told them of my disease, told them of the risk factor
they face from my having it, what to watch out for, what to tell their own doctors.
And the reality is.. if one or both has it, there's nothing I or they can do except to get diagnosed and start treatment. Same goes if they get it in the future. Those fears you feel are all too real.. that's from one parent to another.. Problem is that
I've always found that in life, it's not the troubles you expect that hit you hardest..
it's the ones you least suspect and are totally unprepared for. So try to look for the good things in life, and try to stop or limit your worrying. worrying won't help!

 

[ruthymg]

Hi W, I have no one else in my family with crohns so I have no experience of your situation and I was going to say, talk to Kev, but I see he bet me to it lol


Ruth

 

[Stuffette]

in the family

Yeah, my Dad was diagnosed with Colitis when he was my age and we have a history of undiagnosed issues in my family. I just thought it was because we ate rich foods. He never really treated the problem but he did change his diet drastically and that has helped him quite a bit.

I find out now that my great aunt (my grandfather's sister) on my father's side died of Crohn's complications.

My nephew is showing symptoms and I keep trying to tell my sister to look into Crohn's but they never do.

Luckily my daughter takes after my husband's side of the family and eats anything and everything and doesn't have any issues like my side of the family.

 

[TammySue62]

Hi Worriedmominmich
I just found out last night that my Oldest brother (his OLdest son ) has UC.
That sounds confusiong that would be my nephwie (sp?)
He was rushed to the hospital FRi. With internal bleeding.
So I understand what the poor boy is going threw.
Still you would think that my oldest brother would call me seeing that he knows that I have CD. Instead he phones my older sister last night.
I have 3 Brothers and 1Sister and Im the lucky one withCD. LOL
No-one else in my family has IBD untill now.
Apparently he lost 40 lbs,wasnt eating felt sick and then he passed out and took him to emerge. He is only24 yrs old.
As far as I know they dont know how we get it , some say it is heredity some say it isnt. Heck I even herd stories that you can get IBD from drinking milk.
Sorry I couldnt be of more help.
I know it can be really hard to deal with. My Daughter thinks that she is gonna get CD. Evertime ther is some little thing wrong with her its like oh no do I have CD.She is quite paranoid.
I find it really odd that both your sister-in-laws have CD.
I was told that it could effect anyone from young babies to your teen years and then from 40 on.But that was like 25 yrs ago.
Now a days a lot more people have some kind of IBD.
I now its hard but try not to worry or stress yourslf out.It will only make your CD flare-up.

 

[worriedmominmich]

an update on my sister in law she is home from the hospital yesterday and she has 3 blockages and she is to have surgery as soon as she heals from her other 2 surgeries that she had last week that found the cd. I apperciate all the kind words that every one has given me. it does make it hard to handle another sister in law with this we have already lost one from this on my son birthday! I have never heard of 3 sisters in the same family getting this ever!!!! makes me think of all the things that i have heard that this is not passed on, only in every other generations, enviroment. do the dr really know about this. will i have to worry about my husband when he is over 40 that he might get this or my kids so many questions that i want to have answered and nobody has any of the right answers for me. sorry that im rambling but im really scared pissed or what every word that best describe my situation right now it does help that i can vent to all the kind people on here that probly have the same question that i do. i will keep every one posted thanks Jessie

 

[mikeyarmo]

Kev is the only other person I have ever heard of with so many occurences of IBD in the same family. I know it is not easy, but you really can not worry about things you can not control. It is like worrying that next year there may be a big rainstorm. It might happen, or it might not happen, but no one really knows or can predict that now. I have faced these problems myself and still do to some degree (what will my health be like in 5 years? 2 years? 1 year? next month?) but I have come to the point where I realize that these are problems that no one can answer, and it is actually harmful to think about them as they just cause further worry and stress. In truth this is something every single person in the world has to deal with (even someone healthy now may face a much different situation in a years time) so while it makes sense that recent events make you worry about this more, there is nothing you can do to predict or answer these questions.

I know it is not fair and it is still scary, but that is how it is for all things that are uncertain in the world. It is why my classmates and I are all worried about what we will do with our lives, as we do not know what we want to specialize in for our final two years of university and we do not know where we will find employment. But worrying about things we can not control does not help us out. All we can do is focus on what we like doing and doing are best at school. When the time comes to find employment, we will do that, whether or not we spend 2 years worrying about it.

So accept what we can not know and I wish you and your family the best of luck.