Mouth sores - Question

[MissLeopard83]

As my previous posts indicate, I have not been diagnosed with IBD, but I have a colonoscopy in 13 days to check for inflammation. After reading several threads here, I see that mouth ulcers are mentioned a few times in relation to IBD. I was wondering if any of you get them on your tongue? I used to get really bad ulcers on the side of my tongue and the tip, all the time, before I went gluten-free for Celiac disease. I don't get them as much now, but I've noticed that my tongue gets really sore for no reason that I know of. Right now, I've got a little sore on the right side. I don't do spicy food (makes my stomach hurt) and I'm really good about staying away from gluten.

 

[ronroush7]

I get canker sores on my lips but I have never had ulcers anywhere on the inside of my mouth.

 

[MissLeopard83]

I get canker sores on my lips but I have never had ulcers anywhere on the inside of my mouth.

I wish I could take a picture of it, but I doubt it would show up. It almost feels like I bit my tongue right at the tip, but I have not.

 

[ronroush7]

Have you been to a dentist?

 

[teeny5]

I have gotten canker sores under my tongue, on the sides of my tongue, inside cheeks, along gum line, and inside the lips for as long as I can remember. I don't get them often, but I do get them. Never a cold sore though.

I do get a sore tongue...almost like I'm getting a canker sore, but then it never develops. I wouldn't be surprised if it's related to Crohn's.

 

[danmc]

Yes, I get them all the time, and especially on the tongue. And when they're against the teeth, it's hard to talk and you slur your speech like you're drunk! I had one on the left side recently, and then that went away, and one of the right side appeared! I had to tell co-workers so they didn't think I was drinking on the job.

I never associated these with a disease but I'm making the connection now.

Dan

 

[Eridon2002]

My mouth sores vary in degrees based on the "dosage" of certain compounds I have figured out cause them. For example, a mild dosage of natamycin will cause what feels like I bit the side of my tongue(where tongue joins mouth) this lasts usually 2 days. If I have a big dose of natamycin on accident(they put this in a lot of foods) I'll get what feels like I've burnt the roof of my mouth with hot cheese. This lasts about a week and is very painful. If I accidentally have carrageenan (such as in my toothpaste) I'll get what looks more like canker sores in my mouth. These are what I am sensitive to, everyone is different.

 

[MissLeopard83]

My mouth sores vary in degrees based on the "dosage" of certain compounds I have figured out cause them. For example, a mild dosage of natamycin will cause what feels like I bit the side of my tongue(where tongue joins mouth) this lasts usually 2 days. If I have a big dose of natamycin on accident(they put this in a lot of foods) I'll get what feels like I've burnt the roof of my mouth with hot cheese. This lasts about a week and is very painful. If I accidentally have carrageenan (such as in my toothpaste) I'll get what looks more like canker sores in my mouth. These are what I am sensitive to, everyone is different.

I try to stay away from carrageenan, alcohol, and SLS in toothpastes and mouthwashes. I know that carrageenan causes inflammation and SLS is not necessary - it causes gum sloughing where I get these weird white strings in my mouth and it stinks. Right now, I'm using CloSYS toothpaste, but I used to use Tom's of Maine Clean and Gentle (no bad ingredients). I think Tom's discontinued that TP though since I can't find anywhere, even online. CloSYS has a good flavor and it works nice, but it was PRICEY! I bought it at Walgreens for $7.99 ($2 off the original price of $9.99). It's a big tube, however, so it should last a while. I also use the generic version of Crest Pro-Health Alcohol-Free Mouthwash. I've used Natural Dentist and Biotene PBF in the past but they're very expensive.

 

[kiny]

It's an incredibly common symptom for people with crohn's disease. I had up to 14 in my mouth when I was first diagnozed. Was highly annoying during eating. I don't think there is any other easily recogniseable symptom that is so consistently found as mouth ulcers are in people with CD.

It's so common there are studies about the mouth ulcers. I love this study, Behr is trying to determine if the ulcers in the intestines....start from the outside in, so from the outside lumen into the intestinal wall...or from the inside out, starting in a transmural fashion from the transmural to the mucosa. And then you can compare those ulcers in the intestine, with mouth ulcers from the same patients.

http://www.ncbi.nlm.nih.gov/pubmed/19924803

 

[kiny]

I wish I could take a picture of it, but I doubt it would show up. It almost feels like I bit my tongue right at the tip, but I have not.

You can easily shoot a mouth ulcer, even the ones fully in the back lined up against your jaw, I've done it before. Just need some light in your mouth that's all. (use a flash or open your mouth in front of a strong light). Or ask in the hospital they take one, there's tons of cameras laying about in hospitals for insurance reasons.

 

[MissLeopard83]

You can easily shoot a mouth ulcer, even the ones fully in the back lined up against your jaw, I've done it before. Just need some light in your mouth that's all. (use a flash or open your mouth in front of a strong light). Or ask in the hospital they take one, there's tons of cameras laying about in hospitals for insurance reasons.

The sore is gone now. Thankfully, I've never been admitted to the hospital (currently, undiagnosed).

 

[kiny]

The sore is gone now. Thankfully, I've never been admitted to the hospital (currently, undiagnosed).

That's good to hear. You get used to it, trust me. It's not as fun as hanging in the tree like that leopard, but it's not as bad either once you get to know some on staff.

 

[MissLeopard83]

That's good to hear. You get used to it, trust me. It's not as fun as hanging in the tree like that leopard, but it's not as bad either once you get to know some on staff.

LOL, I had a good little giggle from the leopard reference. :ylol: