My 6 yo son has had bloody stools for months had scope and colonoscopy. GO Dr. Thought ulcerative colitis but ordered mre after biopsies came back. Had mre Tuesday. 24 hours after procedure started having stomach cramps and diarrheah. Called nurse this morning said Dr thought side effects were common and could last a few days. He has gotten worse through the evening. Real low grade fever committed once buy jeeps having eaves of pain and nausea. I'm concerned. Is this a semi normal reaction? Reads real close to an apendicidous. But wouldn't they have noticed an inflamed apendix in the MRE? Should I wait it out, take him to er? It's 230am right now. Wait until 8 and call the gi Dr? Help!!! Scared mama bear.
MRE side effects
- Thread starter Dmetz4
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Help Support Crohn's Disease Forum:
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If you are concerned at all then call the on call doc and /or go straight to the ER
The barium can cause issues for kids
Did he pass pure white stool?
Kids with Crohns can get normal kid issues as well like appendicitis
So ....
The MRE would not cause low fevers that would be the inflammation
The barium can cause diarrhea and belly pain
It does for ds but he is also allergic to it
How is he doing now ?
What did the on call doc say ?
The barium can cause issues for kids
Did he pass pure white stool?
Kids with Crohns can get normal kid issues as well like appendicitis
So ....
The MRE would not cause low fevers that would be the inflammation
The barium can cause diarrhea and belly pain
It does for ds but he is also allergic to it
How is he doing now ?
What did the on call doc say ?
He is still having the waves of cramps. I have a message into the Dr. but haven't heard back yet.
He did not ever have pure white bm. He hasn't had a temperature this morning, but has had waves of nausea again. I just want this little guy to feel better! He did eat some GF toast so i was able to give him his meds.
I will keep you posted on the call from the dr.
Thank you for the support. Helps just getting it out to someone who understands what i am talking about. Family and friends just don't understand it all just yet. Heck, my husband and i don't just yet either.
He did not ever have pure white bm. He hasn't had a temperature this morning, but has had waves of nausea again. I just want this little guy to feel better! He did eat some GF toast so i was able to give him his meds.
I will keep you posted on the call from the dr.
Thank you for the support. Helps just getting it out to someone who understands what i am talking about. Family and friends just don't understand it all just yet. Heck, my husband and i don't just yet either.
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The barium from
The MRE causes white stool
So we were told to watch specifically for it to pass
And Increase fluids /miralax for ds
Ds has constipation with his Crohns though
The MRE causes white stool
So we were told to watch specifically for it to pass
And Increase fluids /miralax for ds
Ds has constipation with his Crohns though
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Poor little guy!! My daughter had stomach aches and nausea after the MRE too. We were told to give her Miralax to clean out her system. She had white BMs for a couple days.
Is your son having lots of fluids? That should help.
I hope the doc responds soon. I wouldn't hesitate to call the on-call GI after hours if he is miserable at night.
Hang in there!!
Is your son having lots of fluids? That should help.
I hope the doc responds soon. I wouldn't hesitate to call the on-call GI after hours if he is miserable at night.
Hang in there!!
They called me back and prescribed omeprazole to help with the stomach cramping. Has not gotten better and luckily the on call Dr was his Dr. They are stopping the sulfasalazine. Thinks he might be having a reaction to it. I hope that helps! He just got done vomitting which caused me to call again. Was readyvto take him to the ER. I hope he gets some relief. Thanks ladies.
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That's only just a ppi for bad reflux
Not Crohns cramping ?????
Sulfanazine is tough
What other Crohns meds is he on?
Sulfanazine is old school drug which is not approved as a monontherapy for Crohns
It only fixes the top layer and Crohns goes all the way through
Ds used to vomit with his Crohns
A lot
He started on pentasa (5-asa )similar to sulfanazine (Less side effects -but still not recommended -approved for Crohns)
Kept vomiting
Moved to 6-mp =8 months of misery
Vomiting unless he was formula only
Then mtx -3 months of more misery with vomiting and vasculitus
So they switched to remicade
After his third infusion and (7 weeks)
The vomiting andbelly pain stopped and I got my kid back
Big hugs
to you
Not Crohns cramping ?????
Sulfanazine is tough
What other Crohns meds is he on?
Sulfanazine is old school drug which is not approved as a monontherapy for Crohns
It only fixes the top layer and Crohns goes all the way through
Ds used to vomit with his Crohns
A lot
He started on pentasa (5-asa )similar to sulfanazine (Less side effects -but still not recommended -approved for Crohns)
Kept vomiting
Moved to 6-mp =8 months of misery
Vomiting unless he was formula only
Then mtx -3 months of more misery with vomiting and vasculitus
So they switched to remicade
After his third infusion and (7 weeks)
The vomiting andbelly pain stopped and I got my kid back
Big hugs
to you
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- Jul 2, 2013
- Messages
- 6,750
Something like Levsin might help with the cramping temporarily. It's an anti-spasmodic, so it won't actually treat the Crohn's but it may help with the cramping. It works really well for my daughter.
Sulfasalazine is really not meant to be used by itself unless your son has UC. For Crohn's, generally you need at least an immunomodulator (like Methotrexate or 6MP) or a biologic or possibly both.
Biologics tend to work the fastest and are most effective. Now GIs are using them early in the course of the disease more and more to prevent complications.
They used to "step up medications" - start with the mildest/weakest like Sulfasalazine or Pentasa, then an immunomodulator, then a biologic.
Now the "top down" strategy is more common - using the most effective medications first, to prevent surgery and other complications (fistulae, abscesses, strictures).
If he's having trouble staying hydrated, then Pedialyte is probably a good idea. Is he still having diarrhea? If he gets really dehydrated, then I'd take him in.
Good luck and hang in there!!
Sulfasalazine is really not meant to be used by itself unless your son has UC. For Crohn's, generally you need at least an immunomodulator (like Methotrexate or 6MP) or a biologic or possibly both.
Biologics tend to work the fastest and are most effective. Now GIs are using them early in the course of the disease more and more to prevent complications.
They used to "step up medications" - start with the mildest/weakest like Sulfasalazine or Pentasa, then an immunomodulator, then a biologic.
Now the "top down" strategy is more common - using the most effective medications first, to prevent surgery and other complications (fistulae, abscesses, strictures).
If he's having trouble staying hydrated, then Pedialyte is probably a good idea. Is he still having diarrhea? If he gets really dehydrated, then I'd take him in.
Good luck and hang in there!!
