My body hates me!

[lookame]

It's most likley because I'm under an extream amount of stress. Right now I am going through a touchy divorce(not so much because of "feelings" we've been separated for 5 yrs, he's got a baby with another girl... more because he's asking for things he doesnt deserve) I wake up every morning with bad headaches and extreamly tired like I had no sleep at all the night before.

Anyway I noticed that with all the medicine I'm on(remicaid every 8 weeks, 50 mgs 6mp, and 4 pills of lialda) that my crohns still hasn't settled. It's better but when I get around the 6 weeks mark then I start passing blood. Yesterday it was so bad I was passing clots. I can tell when it's starting to get bad too by how deep colored the blood is(and it was VERY deep purple yest). I made the mistake by telling the nurses in my infusions center that I was passing blood again and they flipped out asking me how much there was, called my GI(like I had the plague or something) and tol me I needed to call him after my infusion...they almost didn;t give me my infusion O.O. The remicade is supposed to resolve the bleeding why wouldn;t they give me the infusion??

Ugh I feel like I'm in an ever revolving circle of I think I'm getting better to steadily getting worse. I'm starting to think maybe the best option is to remove my blasted colon. I don;t get why my body hates me so much I'm running out of options. I feel like I'm a decent person but yet I feel like the world is against me. One step foreward, 2 steps back and nothing ever goes right for me either.

Anyway thanks for reading my rant I just really needed to...I dunno get it off my chest

 

[woops!]

Rant away... we all do it from time to time. Yikes you are dealing with alot. I feel for ya... about 7 years ago I was finishing nursing school (yeah no pressure there) and going though a divorce all within the same few months. Result was a nice flair... lost of pred, just what you want when you go to take a state exam... roid rage. UGH! I got through it one day at a time. Deep breathing, and occasionally a pedicure for me! You have to do something nice for yourself every once in a while. Sorry about the bleeding, has you GI chaged or given you anything new to help. Hang in there it all has to have an ending sometime... Woops!

 

[Jessi]

You are more than a DECENT person. You are fabulous!

I'm sorry that you're going through such a horrible time. Divorce is always ugly. Just hang in there, sweetie. :hug:

And if you're bleeding at 6 weeks, maybe you need to adjust your infusions a bit. Your doctor may want to have you do them every 6, rather than 8. It helps a lot of people to move the infusions closer together.

Good luck with whatever you choose.

 

[lookame]

I was pushed into a corner and I feel I was forced into agreeing with a lot of terms when it came to visitation. Debts were dropped and they decided to not change child support. Either way I feel rather defeated...I know it's a negotiation and we worked rather well with it but still I feel like y lawyer kept deanding me to agree to things I wasn;t comfortable agreeing with and then she'd say well if you want a continuance then you have to pay his attorney fees *sigh* I have a migrain

 

[vanack]

I am new to the site and just wanted to give some feedback/information about how I have been dealing with crohn's for the last 20+ years. I am a 41 yr old male and have tried every drug out there except for Humira. For most of the last 20 years I have felt pretty good on a day-to-day basis. This last week I had a major episode with my Crohn's (which is in my small bowel) which landed me in the hospital. I ended up with a complete obstruction in my small bowel and am now being told I will have to have a resection of about 6 inches of my small bowel area. This surgery scares me to death!!! I am reading about the long recovery time and the issues people are having with the recovery(pain, etc.) Are there any success stories about the quality of life post-surgery??? If I am going through with the pain, I would like to know that there may at least be some type of light at the tunnel that will make this surgery seem worth it. Thanks!

 

[Neko76]

Hey Van, First try starting a new thread in the support or general discussion area with a surgical reference and you will most definitely get much more response.... I just happened upon your post as I was reading but your post will be kind of lost here. I personally have just had a permanent ileostomy placed just 6 months ago and it has been the BEST thing ever and if you nose around the stoma sub forum you will find a lot of us are sooooo much happier having hadthe surgery. I don't know if you are having a straight resection or a temporary ileostomy ( I was under the impression that all rejections require at least a temporary ileostomy so that the respected area can heal....but maybe I am wrong.) you will findthat everyone has varying outcomes from surgery from great to a number of complications but as a rule surgery has made an improvement for the majority of us. I will leave it at that as I don't know ow enough of what you're looking at in terms of surgery but please feel free to message me back with any specific questions and/or let me know some of your specific concerns and I will do my best to help.... I could also direct you to some of our members that have had the same surgery as you.....

Welcome to the forum..... It's been a godsend for me,

Kat

 

[Neko76]

Just want to apologize for my spelling and grammar.....my playbook is autocorrecting inappropriately......grrrr :ybatty:.

K

 

[vanack]

Neko,

Thanks for the feedback. I have a final meeting with the surgeon on Thursday of next week and will the final information about what the exact surgery will be. I had been told that it will be a reconnect without the use of a bag. I have been told that they may be able to do a laparascopic surgery in my case, but may not know for sure until the surgery begins. I will know for sure next week and will ask for questions at that time. The forum looks like a great site and something that can be very beneficial to all.

VanAck

 

[SarahAnne]

VanAck ~ I'm 35, this time last year I weighed 82 lbs.

I had a resection way back in 1996 when I was first diagnosed. About 5 yrs ago I started having more problems, my flares lasting longer and longer until I was in a constant flare. I had a stricture at my surgery site and for about 3 years my GI dilated it during my yearly colonoscopy. The last time I only had relief for 3 months.

Last summer I hit rock bottom. I was hospitalized four times in four months, for a week at a time. My GI started giving me anti-schizophrenia drugs and ordering pelvic ultrasounds, he thought I was imagining it or it was "female" problems. When I finally went to a different hosp. & GI, I was told I needed surgery right away but I was too malnourished for it. I spent 6 weeks on EN and then had my resection.

Sorry for my long winded reply. The point is....

I'm in remission now. I've been canoeing 3 days a week since the beginning of March. I'm going camping in 2 weeks. This time last year, I was lying around waiting to die. The surgery was the BEST THING EVER. It was a reconnect, no bag. Mine was open, too much previous scar tissue to do it lap. Even so, my recovery was quicker than I expected. I found the pain to be less intense than I remembered from my surgery 15 years ago. Medical breakthroughs, I guess.

Good luck with your consult. I know it is frightening, but I can't stress how much of a difference made in my life. I feel like I can manage my Crohn's now, instead of it controlling me.

 

[SarahAnne]

Melissa

Went through something similar years ago with my ex.

It will get better, but not as soon as you want it to.

Thinking about you, good luck with everything!

 

[SarahAnne]

And you are an AMAZING person. Don't let anyone make you feel differently!

:Karl:

 

[Jessi]

That's right, Melissa. :hug:

We all know you and love you here.

 

[vanack]

SarahAnne,

Thank-you very much for sharing your story with me and the feedback. I will keep you posted on the consultation and what direction I will be heading for sure with the surgery. I look forward to continued talks with you. Your story is for sure a success!!! Congratulations to you and I wish you continued success with your Crohn's. I hope mine turns out just as successful.

Jason