Hi all,
my son was diagnosed with IBD (originally thought to be Crohn's but now though to be UC) in the summer of 2007 when he was nearly 3 1/2. A colonoscopy revealed extensive damage to his colon & large intestine. The damage was so great that an examination of the small intestine wasn't possible. He started with a large dose of Cortisone & Salofalk & we spent a horrific 4 weeks in the children's hospital before he was well enough to come home. The initial diagnosis was Crohn's Disease due to terrible rectal fissures & mouth ulcers.
Since then things have not been too bad & he was finally weened completely off oral Cortisone at the end of 2008. Since then he has taken a combination of Azathioprene & a Cortisone rectal foam.
In July of this year he had another colonoscopy & endoscopy & it was possible to get all the way into the small intestine where the doctors took a large number of biopsies. These biopsies indicated that the small intestine wasn't effected & the disease was confined to the large intestine indicating UC rather than Crohn's Disease.
It was then decided to stop the rectal foam treatment & go back to Salofalk.
So far so good, there have been no further signs of his disease.
However (& I'm not sure if this is coincidence or not hence the reason I am here...) he has started to exhibit disturbing signs in other ways:
• Argumentative
• Moody, aggressive
• Not caring about people/things/himself
• Constantly changing his mind about things - i.e. agreeing to do something the 30 seconds later saying no
• Challenging authority (only of his parents though)
He started school about a month ago (we are in Germany where the kids start school quite late) & it has been hell. He seems to have no problem in school but at home where he has to do homework (& German kids get a lot as they are finished by noon at the latest!) he just point blank refuses... then promises to do it... then refuses again 30 seconds later... then gets aggressive & says he wants to hurt us etc.
The strange thing is that he was doing loads of homework throughout the summer in preparation for school & although he wasn't keen it was never really a big problem. Also, when he tries, he can do it & is actually quite good.
In trying to find a solution we are examining possible causes, which brings me to my main question:
• Does anyone have any experience of Salofalk causing these kinds of side effects?
• Could it be caused by something else related to his illness?
• Are all kids (with IBD or not!) like this & we just have to get through it?
As a side note, he was noticeably moody in 2007 after going onto Cortisone so this being related is not out of the question for us.
Btw, if this thread is better placed elsewhere please let me know!
Thanks in advance for all/any input!
my son was diagnosed with IBD (originally thought to be Crohn's but now though to be UC) in the summer of 2007 when he was nearly 3 1/2. A colonoscopy revealed extensive damage to his colon & large intestine. The damage was so great that an examination of the small intestine wasn't possible. He started with a large dose of Cortisone & Salofalk & we spent a horrific 4 weeks in the children's hospital before he was well enough to come home. The initial diagnosis was Crohn's Disease due to terrible rectal fissures & mouth ulcers.
Since then things have not been too bad & he was finally weened completely off oral Cortisone at the end of 2008. Since then he has taken a combination of Azathioprene & a Cortisone rectal foam.
In July of this year he had another colonoscopy & endoscopy & it was possible to get all the way into the small intestine where the doctors took a large number of biopsies. These biopsies indicated that the small intestine wasn't effected & the disease was confined to the large intestine indicating UC rather than Crohn's Disease.
It was then decided to stop the rectal foam treatment & go back to Salofalk.
So far so good, there have been no further signs of his disease.
However (& I'm not sure if this is coincidence or not hence the reason I am here...) he has started to exhibit disturbing signs in other ways:
• Argumentative
• Moody, aggressive
• Not caring about people/things/himself
• Constantly changing his mind about things - i.e. agreeing to do something the 30 seconds later saying no
• Challenging authority (only of his parents though)
He started school about a month ago (we are in Germany where the kids start school quite late) & it has been hell. He seems to have no problem in school but at home where he has to do homework (& German kids get a lot as they are finished by noon at the latest!) he just point blank refuses... then promises to do it... then refuses again 30 seconds later... then gets aggressive & says he wants to hurt us etc.
The strange thing is that he was doing loads of homework throughout the summer in preparation for school & although he wasn't keen it was never really a big problem. Also, when he tries, he can do it & is actually quite good.
In trying to find a solution we are examining possible causes, which brings me to my main question:
• Does anyone have any experience of Salofalk causing these kinds of side effects?
• Could it be caused by something else related to his illness?
• Are all kids (with IBD or not!) like this & we just have to get through it?
As a side note, he was noticeably moody in 2007 after going onto Cortisone so this being related is not out of the question for us.
Btw, if this thread is better placed elsewhere please let me know!
Thanks in advance for all/any input!
, and it was primarily school based. At school he was the perfect student but the minute he hit the door all hell broke loose. His issues related to boredom, fair play and tolerance and the only reason I could ever find as to why he only displayed at home was because this was his comfort zone and he was able to do things here that he would never dream of doing in public. He eventually grew out of it. There was 'cause' for his behaviour that I don't generally discuss openly, it's not something bad! :lol: but if you think some of what I have said may fit your son then please feel free to PM me and we can discuss it further. 
