- Joined
- Nov 1, 2010
- Messages
- 8
I mainly came to this forum curious about the bruises that are appearing like lumps on my arms and legs, they're pretty painful now, i'm wondering if anyone else is having them, who isnt taking Prednisolone because i'm not on that, but am still getting the bruises.
and because it ays my story, i shall plonk it here, i tried to keep it brief but theres a lot connected to it :') So, i was diagnosed in august 08, when i was 14. For about a year before being officially diagnosed i was in a terrible state, obviously at very first i thought it was a bug, but the pain was ongoing and after a month i went to see my doctor, who decided i was constipated.
Which well, is a bit ridiculous considering i ws going to the loo 4 times a day, to which he stated it was 'going around a blockage'. Me and my dad where very dubious of this doctor but i took the tablets he set me to make me go to the loo even more. (It was not a fun time)
It just carried on, sometimes it would settle slightly so i never really stopped anything in my daily life, i find myself the kind of person who refuses to let illness stop me and stuff, so i still went dancing and did 9 mile walks in the moors for a science trips i was involved in.
Then when i was on holiday in scotland, it was obvious how ill i'd become, im only small as it is, but i'd lost about two stones, looked like a skeleton, and spent two weeks moving from a chair in our tent to my bed, due to being exhausted all the time and only eating apple pies (i dont know why this as just one food i could about handle). We decided i should go to A+E when i got home, my gp was just being certain i was constipated but there was obviously something worse going on.
When i went to my hospital i was actually in the wort pain, but i hate complaining about it so i think my dad had to mention it to the nurses. At first they asked me countless times if I was pregnant. It was ridiculous again, im pretty sure a 14 year old girl who has not done 'the deed' can be pregnant, i was a little insulted they presumed it and presumed i was lying.
They sent me to a childrens hospital who couldnt diagnose me for weeks, they where actually certian i didnt have crohns, even the main consultant just decided i didnt have it.
I had millions of tests and none of them showed i had crohns, they even said to my parents there could be a chance i had cancer! I didnt know this at the time, but how worried my parents where must have been awful. I was on antibiotics on a drip and actully started feeling better quickly.
FINALLY when they diagnosed me i apparently actually had a lot of my stomach covered in the ulcers, they put me on infliximab infusions every two months, and iron infusions every week for 8 weeks as i was very aneamic.
I had to go on the liquid only diet for 8 weeks also, drinking the ansure plus milkshakes only, which obviously was hard, but it relaxed my stomach and i was better for christmas so i could eat lots of turkey
i've moved doctors now, because the consultant who diagnosed me, really just treated me like i was a liar. Even though he is actually a doctor for children, i was probably older than most of his patients, and looking at the other patient around my age on the ward, (spoilt, melodramatic) i think he must have presumed i was like them, he never spoke directly to me, and it made me feel like i wasnt even considered. So i've moved to the adult doctors as im 16 now. And hoping i will get treated like an actual person!
Im now taking pentasa, and azithriprine and currently having a flare up once again.
and because it ays my story, i shall plonk it here, i tried to keep it brief but theres a lot connected to it :') So, i was diagnosed in august 08, when i was 14. For about a year before being officially diagnosed i was in a terrible state, obviously at very first i thought it was a bug, but the pain was ongoing and after a month i went to see my doctor, who decided i was constipated.
Which well, is a bit ridiculous considering i ws going to the loo 4 times a day, to which he stated it was 'going around a blockage'. Me and my dad where very dubious of this doctor but i took the tablets he set me to make me go to the loo even more. (It was not a fun time)
It just carried on, sometimes it would settle slightly so i never really stopped anything in my daily life, i find myself the kind of person who refuses to let illness stop me and stuff, so i still went dancing and did 9 mile walks in the moors for a science trips i was involved in.
Then when i was on holiday in scotland, it was obvious how ill i'd become, im only small as it is, but i'd lost about two stones, looked like a skeleton, and spent two weeks moving from a chair in our tent to my bed, due to being exhausted all the time and only eating apple pies (i dont know why this as just one food i could about handle). We decided i should go to A+E when i got home, my gp was just being certain i was constipated but there was obviously something worse going on.
When i went to my hospital i was actually in the wort pain, but i hate complaining about it so i think my dad had to mention it to the nurses. At first they asked me countless times if I was pregnant. It was ridiculous again, im pretty sure a 14 year old girl who has not done 'the deed' can be pregnant, i was a little insulted they presumed it and presumed i was lying.
They sent me to a childrens hospital who couldnt diagnose me for weeks, they where actually certian i didnt have crohns, even the main consultant just decided i didnt have it.
I had millions of tests and none of them showed i had crohns, they even said to my parents there could be a chance i had cancer! I didnt know this at the time, but how worried my parents where must have been awful. I was on antibiotics on a drip and actully started feeling better quickly.
FINALLY when they diagnosed me i apparently actually had a lot of my stomach covered in the ulcers, they put me on infliximab infusions every two months, and iron infusions every week for 8 weeks as i was very aneamic.
I had to go on the liquid only diet for 8 weeks also, drinking the ansure plus milkshakes only, which obviously was hard, but it relaxed my stomach and i was better for christmas so i could eat lots of turkey
i've moved doctors now, because the consultant who diagnosed me, really just treated me like i was a liar. Even though he is actually a doctor for children, i was probably older than most of his patients, and looking at the other patient around my age on the ward, (spoilt, melodramatic) i think he must have presumed i was like them, he never spoke directly to me, and it made me feel like i wasnt even considered. So i've moved to the adult doctors as im 16 now. And hoping i will get treated like an actual person!
Im now taking pentasa, and azithriprine and currently having a flare up once again.
