My story, feels like torture
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- Sep 24, 2010
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Hi Joshua and welcome to the forum. I'm sorry I can't help with the fistula, but I did have a rather large fissure. Doc told me to put a gel (cream?) called Rectogesic on it. This worked wonders, and cleared it completely within about a week. Have you been given anything like this to help with it? I have only had one recurrence of it opening up again, and a couple more days with the Rectogesic fixed it again.
I don't understand why the docs don't want to check if you have a fistula - why is it pointless? I know a lot of people on here have had surgery to fix it...
I don't understand why the docs don't want to check if you have a fistula - why is it pointless? I know a lot of people on here have had surgery to fix it...
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- Sep 5, 2010
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First thing's first, find a new doctor. -__- Clearly they have no intention of helping you. I can't believe they'd say what they did; shame on them. >=P
Secondly, as I have chronic fissures and tearing (the anus won't stretch under a lot of inflammation, it just tears) my doctor prescribed Anucort hyrdocortisone rectal suppositories. If not for them, I'd still be in almost as bad a pain as you if not the same. I was using topical lidocane (2% before the BM and 5% after) to try and cope but that just wasn't enough. It was still leaving me with anxiety and like you, I didn't want to go and would postpone it till I couldn't standing it or was physically sick. Yeah...lots of screaming and crying...and praying... @_@
I can't remember if mine was for 8 months but I know for about 6 months it was really bad right before the suppositories were administered. Now that I think about it, it was gradually increasing over a year's time. While I never lost blood like you did in the amounts, I did bleed only thanks to the tearing. I now too have hemorrhoids that will bleed with the more uncomfortable BM's. It's always sore, but the Anucort does keep things from tearing so much if at all and has healed with nightly use, the fissures. Though I still have the maligned rectal tissue poking out like a bird beak from my butt as that's just kinda how it healed. =/
I'm so sorry you're havin' these issues. I feel your pain and understand. (((((hugs))))) But definitely find a doctor that will actually seek to treat you and maybe try the suppositories. Relief is a possibility, it's just a matter of finding what works. Oh, and as you're 21, I would think you could also have the option of Humira as I was on that for a while and it did really help. Had to stop though thanks to my body attacking it. -__- Apparently it doesn't do synthetic.
Secondly, as I have chronic fissures and tearing (the anus won't stretch under a lot of inflammation, it just tears) my doctor prescribed Anucort hyrdocortisone rectal suppositories. If not for them, I'd still be in almost as bad a pain as you if not the same. I was using topical lidocane (2% before the BM and 5% after) to try and cope but that just wasn't enough. It was still leaving me with anxiety and like you, I didn't want to go and would postpone it till I couldn't standing it or was physically sick. Yeah...lots of screaming and crying...and praying... @_@
I can't remember if mine was for 8 months but I know for about 6 months it was really bad right before the suppositories were administered. Now that I think about it, it was gradually increasing over a year's time. While I never lost blood like you did in the amounts, I did bleed only thanks to the tearing. I now too have hemorrhoids that will bleed with the more uncomfortable BM's. It's always sore, but the Anucort does keep things from tearing so much if at all and has healed with nightly use, the fissures. Though I still have the maligned rectal tissue poking out like a bird beak from my butt as that's just kinda how it healed. =/
I'm so sorry you're havin' these issues. I feel your pain and understand. (((((hugs))))) But definitely find a doctor that will actually seek to treat you and maybe try the suppositories. Relief is a possibility, it's just a matter of finding what works. Oh, and as you're 21, I would think you could also have the option of Humira as I was on that for a while and it did really help. Had to stop though thanks to my body attacking it. -__- Apparently it doesn't do synthetic.
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- Mar 13, 2010
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- 763
Hi Joshua,
Sorry about the tough time you're having. You didn't say if the pain was from your anus or guts. I'll assume anus because you mentioned about a fistula. When I had terrible anal pain last year, my doc prescibed a wonderful med called AnaMantel. It's a painkiller with Lodicaine you put into the anus and get 12 hours of relief. You need a doc to get it but made a huge difference for me.
Good luck and get a new doc.
Sorry about the tough time you're having. You didn't say if the pain was from your anus or guts. I'll assume anus because you mentioned about a fistula. When I had terrible anal pain last year, my doc prescibed a wonderful med called AnaMantel. It's a painkiller with Lodicaine you put into the anus and get 12 hours of relief. You need a doc to get it but made a huge difference for me.
Good luck and get a new doc.
Hey man Im so sorry that sounds awful but remicade did wonders for me recently and so I hold out hope for you too. Youll find a ton of great people here for support and help and I wish you the best of luck! Welcome to the forums.
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