Hi my name is Tabby and I have been diagnosed with crohns for 3 years now. I have been on Pentasa, Endocort, Imuran, Methotrexate, Humira for crohns management and I have also been on Morphine for pain. My crohns started affecting my life shortly after the birth of my daughter, 3 years later I was so ill and unable to even do any normal activities I was in so much pain the hospital was my second home. the doctors gave me morphine for pain which I became addicted to, then I couldn't keep food down in one week I lost 5lbs. called my specialist with no luck after 3 weeks of not being able to keep food down and dropping down to 90lbs, I felt as though no one would help me. My family worried about me all the time. finally one day my mom had to go to the hospital (she has crohns as well) I decided to check myself in to get more morphine, this time was different, the x-ray showed I was completly blocked and the doctor told me I could not leave I needed surgery.
I went outside and called my bf, thats when the doctor told my mom that if i left he was giving me 3 days to live that my body just had nothing left to give. at this point I looked like a skeleton with skin. so I stayed but my surgery would not be as quickly as I planned, I had to have a PICC line to feed me TPN,Lipids,IV,Morphine and Iron for 3 weeks to make me strong enough this killed me because I missed my babygirl and going from seeing her everyday to only an hour every other day was not enough and she was afraid of me for the first while but it got better . after a month in the hospital and getting very depressed my weight dropped to 82lbs (very scary) . so they did surgery Finaly! It went awesome no complications, was home in a week, healed really nice even got a job almost a month later. but now 3 months post op my crohns is came back. Im really scared it is going to be like last time. Ive cried everyday for the past week since i found out . I find myself slipping into old habits, barely eating or drinking, sleeping alot , taking pain meds, and crying alot . I just wanted to be normal so bad but i guess it just is not meant to be the only thing that really sucks is i was just starting to be that fun mom that plays with her kid and takes her to the park. and now i cant because im in too much pain .. just wish she didnt have to go through it too!
I went outside and called my bf, thats when the doctor told my mom that if i left he was giving me 3 days to live that my body just had nothing left to give. at this point I looked like a skeleton with skin. so I stayed but my surgery would not be as quickly as I planned, I had to have a PICC line to feed me TPN,Lipids,IV,Morphine and Iron for 3 weeks to make me strong enough this killed me because I missed my babygirl and going from seeing her everyday to only an hour every other day was not enough and she was afraid of me for the first while but it got better . after a month in the hospital and getting very depressed my weight dropped to 82lbs (very scary) . so they did surgery Finaly! It went awesome no complications, was home in a week, healed really nice even got a job almost a month later. but now 3 months post op my crohns is came back. Im really scared it is going to be like last time. Ive cried everyday for the past week since i found out . I find myself slipping into old habits, barely eating or drinking, sleeping alot , taking pain meds, and crying alot . I just wanted to be normal so bad but i guess it just is not meant to be the only thing that really sucks is i was just starting to be that fun mom that plays with her kid and takes her to the park. and now i cant because im in too much pain .. just wish she didnt have to go through it too!
