Hello everyone, as you can probably tell, i am new to the forum. in person i'm rather shy and personal, so haven't told anyone about this other than my parents. but this is the first time i've really been about to express my feelings, so thanks for reading. knowing that i'm not the only one here is a great comfort.
I have suffered symptons for just over a year now, and was diagnosed with terminal ileal CD about 7 months ago. i started with a short course of prednisolone but didnt really feel like they were doing anything. i also started with 6 tablets per day of Pentasa, and looks like i'll be on those bad boys for life
I'm currently in the middle of a 1 month trial of mebeverine as well, but tbh i don't feel like they are doing much.
Before taking any meds, i had a lot of toilet troubles and tummy pains, but luckily the toilet problems have gone down quite a bit now. But i still suffer from discomfort on the bum, mainly when sitting down, which has plagued me for the last year. I have an office job so i'm on my bum for like 8 hours a day. sitting down, especially after visiting the toilet, is literally a pain in the ass, sore, feels hot and sweaty, and i worry it might smell :sign0085: . i'm in my early 20's and have only started my career. but if this discomfort continues, i dont see how i could continue an office job for another 30 years.
Having a quick look at the forums, i'll admit that my symptoms seem like nothing compared to what others have been through. apart from my sitting discomfort mentioned above, my tummy pains are very bareable/manageable, and havent really experienced any of the other symptoms. maybe the tablets are just doing a good job and i have been in remission for months. but i am still scared. im scared of what might happen to me in the future, and how differently my life might become, how restricted i might get, since i have already avoided a number of activities such as socialising in bars, going to the cinema, sports, in fear of any symptoms flaring up and causing embarrassment. sorry if i sound like a damp sponge.
sometimes it really gets me down. i have felt quite alone and i dont know what to do with my life now.
But then there are days where i feel like, well tbh, i feel like its been a bit of a wake up call. I've recently been watching this program called "the big C" which is about a woman who has been diagnosed with cancer, so changes her life and tries to live it to the full. i know i dont have anything as bad as that, but i kinda feel the same. i feel like i should take more risks, because i dont know what will happen in the future.
And finding this forum, reading your stories, i'm glad i did, because some of you sound so brave, with problems much worse. And it gives me hope. so thank you everyone.
I have suffered symptons for just over a year now, and was diagnosed with terminal ileal CD about 7 months ago. i started with a short course of prednisolone but didnt really feel like they were doing anything. i also started with 6 tablets per day of Pentasa, and looks like i'll be on those bad boys for life
I'm currently in the middle of a 1 month trial of mebeverine as well, but tbh i don't feel like they are doing much.Before taking any meds, i had a lot of toilet troubles and tummy pains, but luckily the toilet problems have gone down quite a bit now. But i still suffer from discomfort on the bum, mainly when sitting down, which has plagued me for the last year. I have an office job so i'm on my bum for like 8 hours a day. sitting down, especially after visiting the toilet, is literally a pain in the ass, sore, feels hot and sweaty, and i worry it might smell :sign0085: . i'm in my early 20's and have only started my career. but if this discomfort continues, i dont see how i could continue an office job for another 30 years.
Having a quick look at the forums, i'll admit that my symptoms seem like nothing compared to what others have been through. apart from my sitting discomfort mentioned above, my tummy pains are very bareable/manageable, and havent really experienced any of the other symptoms. maybe the tablets are just doing a good job and i have been in remission for months. but i am still scared. im scared of what might happen to me in the future, and how differently my life might become, how restricted i might get, since i have already avoided a number of activities such as socialising in bars, going to the cinema, sports, in fear of any symptoms flaring up and causing embarrassment. sorry if i sound like a damp sponge.
sometimes it really gets me down. i have felt quite alone and i dont know what to do with my life now.
But then there are days where i feel like, well tbh, i feel like its been a bit of a wake up call. I've recently been watching this program called "the big C" which is about a woman who has been diagnosed with cancer, so changes her life and tries to live it to the full. i know i dont have anything as bad as that, but i kinda feel the same. i feel like i should take more risks, because i dont know what will happen in the future.
And finding this forum, reading your stories, i'm glad i did, because some of you sound so brave, with problems much worse. And it gives me hope. so thank you everyone.
