- Joined
- Nov 11, 2009
- Messages
- 7
Hey guys,
Have had a pretty epic few weeks, all leading up to me ending up in hospital.
Started off getting progressively worse from just a usual flare, Got so bad i completely stopped eating because i was to afraid that it would make me worse, only eating the smallest amount of plain cereal in the mornings just to take me meds.
Went to multiple after hours doctors had to virtually beg them to give me something to ease the pain/help me sleep, because apparently "they dont know my history" and "Im not a gastro speacialist. This was extremely frustrating as i was in such a bad state yet no one would help.
To be honest i should have taken myself to hospital, but the stubborn inside me thought i could beat this. But i was wrong, tuesday 2 weeks ago i ended up in hospital being pumped full of morphine an tramadol which really didnt make things better. Still in pain and feeling high as hell of morphine and feeling like you wanna throw up is not a nice feeling.
After the multiple hours waiting and the multiple doctors/nurses/surgeons asking the same questions they decide to insert a NGT ( nasal gastric drain). To which the lovely nurse (sarcasm) informs me that this will be the first time she has tried to insert one on a conscious patient. As the doctors beleived i had a restriction somewhere in the intestinal tract. And the only way i had been making myself comfortable was to force myself to throw up every half hour. This tube only made things worse, she barely inserted it far enough, but im not a nurse so i didnt know this and having it done for the first time i didnt know what it was doing.
After laying in pain in a narrow hospital bed, getting pumped full of painkillers that were making me feel worse they decided it was time for an X-ray, Which confirmed the doctors suspicion. There was a restriction on my right flank, from there i was taking to the hospital prep ward where i spent the night waiting for them to come take me away for surgery. 12 hours later and still waiting they decide not to as they believe i had perforated but it had somehow sealed itself back over and i was responding quiet well to the steroids they where pumpin into me.
I spent a further 24 hours waiting in the surgical prep ward incase any thing happened. But after i was rehydrated via IV and the inflammation had started to calm down. I was taken to a post op ward where i spent the next 5 sleepless nights nights working my way back to eating normal food. Ice chips to water to clear oral fluids to free oral fluids and finally back to normal food, GLORIOUS food
The level of care i received was absolutely amazing for public hospital, the doctors that i had working on my case were absolutely brilliant. I had complete confidence in them towards the end. With avoiding cutting me open just for the sake of it.
As i am going through the transition of stopping Pentasa and waiting for Azathioprene to kick in (5th week now) the only thing really controlling the flare was my 40mg daily of prednisone.
I will be needing surgery at some stage, which i have completely come to terms with. They plan to remove about 20 cms of intestine that is pretty much useless it is that scarred from repeat flares and a possible stent for one of my kidneys as i was only operating at half function due to the pressure of the bowel pressing against it from all the inflammation.
Metronizadol (anti biotic), Prednisone tapering dosage and 150mg of Azathioprene daily is what they hope will keep this under control. Weekly blood test, ultrasound to check my kidney function, and a special endoscopy to check a Gastro Intestinal Stromal Tumour are the highlights of my coming month.
This has been one hell of a wake up call and the worst chrons has kicked my ass, what i have needed to start making some healthy changes as i guess i havnt taken things serious enough.
I believe keeping myself healthy through eating healthy food and looking after my body and sticking to my meds i should be able to keep myself in remission and avoid surgery until its absolutely necessary.
But gotta stay positive and keep on goin
Have had a pretty epic few weeks, all leading up to me ending up in hospital.
Started off getting progressively worse from just a usual flare, Got so bad i completely stopped eating because i was to afraid that it would make me worse, only eating the smallest amount of plain cereal in the mornings just to take me meds.
Went to multiple after hours doctors had to virtually beg them to give me something to ease the pain/help me sleep, because apparently "they dont know my history" and "Im not a gastro speacialist. This was extremely frustrating as i was in such a bad state yet no one would help.
To be honest i should have taken myself to hospital, but the stubborn inside me thought i could beat this. But i was wrong, tuesday 2 weeks ago i ended up in hospital being pumped full of morphine an tramadol which really didnt make things better. Still in pain and feeling high as hell of morphine and feeling like you wanna throw up is not a nice feeling.
After the multiple hours waiting and the multiple doctors/nurses/surgeons asking the same questions they decide to insert a NGT ( nasal gastric drain). To which the lovely nurse (sarcasm) informs me that this will be the first time she has tried to insert one on a conscious patient. As the doctors beleived i had a restriction somewhere in the intestinal tract. And the only way i had been making myself comfortable was to force myself to throw up every half hour. This tube only made things worse, she barely inserted it far enough, but im not a nurse so i didnt know this and having it done for the first time i didnt know what it was doing.
After laying in pain in a narrow hospital bed, getting pumped full of painkillers that were making me feel worse they decided it was time for an X-ray, Which confirmed the doctors suspicion. There was a restriction on my right flank, from there i was taking to the hospital prep ward where i spent the night waiting for them to come take me away for surgery. 12 hours later and still waiting they decide not to as they believe i had perforated but it had somehow sealed itself back over and i was responding quiet well to the steroids they where pumpin into me.
I spent a further 24 hours waiting in the surgical prep ward incase any thing happened. But after i was rehydrated via IV and the inflammation had started to calm down. I was taken to a post op ward where i spent the next 5 sleepless nights nights working my way back to eating normal food. Ice chips to water to clear oral fluids to free oral fluids and finally back to normal food, GLORIOUS food
The level of care i received was absolutely amazing for public hospital, the doctors that i had working on my case were absolutely brilliant. I had complete confidence in them towards the end. With avoiding cutting me open just for the sake of it.
As i am going through the transition of stopping Pentasa and waiting for Azathioprene to kick in (5th week now) the only thing really controlling the flare was my 40mg daily of prednisone.
I will be needing surgery at some stage, which i have completely come to terms with. They plan to remove about 20 cms of intestine that is pretty much useless it is that scarred from repeat flares and a possible stent for one of my kidneys as i was only operating at half function due to the pressure of the bowel pressing against it from all the inflammation.
Metronizadol (anti biotic), Prednisone tapering dosage and 150mg of Azathioprene daily is what they hope will keep this under control. Weekly blood test, ultrasound to check my kidney function, and a special endoscopy to check a Gastro Intestinal Stromal Tumour are the highlights of my coming month.
This has been one hell of a wake up call and the worst chrons has kicked my ass, what i have needed to start making some healthy changes as i guess i havnt taken things serious enough.
I believe keeping myself healthy through eating healthy food and looking after my body and sticking to my meds i should be able to keep myself in remission and avoid surgery until its absolutely necessary.
But gotta stay positive and keep on goin
