Need some advice please!! So confused.
- Thread starter Guest18
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Help Support Crohn's Disease Forum:
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First I want to say I am so sorry that this has happened. It can be so confusing and if anyone should be upset it is you. You are the one that is suffering, not your doctor. From now on, this doctor needs to write everything down... most doctors have gone to doing that because when someone is sick, and so much information is being talked about, or not quite all of it talked about, it forces all information to be included: if he wont, you take notes and say it all back to him before you go. You did nothing wrong, I have learned to ask questions, and more questions and bring questions on paper as well. we are fortunate to also be able to use email with our doctors which allows a lot of time and thought.
My daughter who has had IBD in the same area as you have been diagnosed with colitis has similar symptoms. She has never had diarrhea but bleeding with mucous and pain are her main symptoms. As the disease has progressed, the urgency and spasms have intensified. She gets anemic and so iron is a very important part of her daily meds.
In my daughters case, (age 15) she has done the kidney/liver function tests about every 3-4 months in the beginning. Maybe some other members can also add info on this.
If your insurance pays for the fecal calprotectin, it has proved to be a good marker for her GI. However, there were times that we also declined the test so you have every right to decline or ask for any additional tests.
Some other tests that should be included are a CBC, sed rate, Vit deficiencies: VIt D, Vit B12.
I am glad to hear you are looking for another GI. You can find one that is a better fit for you. You are your only advocate and you need someone who is working with you.
I hope you get your flare under control soon. Did you have a colonoscopy?
My daughter who has had IBD in the same area as you have been diagnosed with colitis has similar symptoms. She has never had diarrhea but bleeding with mucous and pain are her main symptoms. As the disease has progressed, the urgency and spasms have intensified. She gets anemic and so iron is a very important part of her daily meds.
In my daughters case, (age 15) she has done the kidney/liver function tests about every 3-4 months in the beginning. Maybe some other members can also add info on this.
If your insurance pays for the fecal calprotectin, it has proved to be a good marker for her GI. However, there were times that we also declined the test so you have every right to decline or ask for any additional tests.
Some other tests that should be included are a CBC, sed rate, Vit deficiencies: VIt D, Vit B12.
I am glad to hear you are looking for another GI. You can find one that is a better fit for you. You are your only advocate and you need someone who is working with you.
I hope you get your flare under control soon. Did you have a colonoscopy?
