Needing advice/help

Crohn's Disease Forum

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Oct 13, 2014
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Hello! I'm Amy. 42 year old mom of five great kiddos :) and happily married for twenty years :)!

To make a long story short, my crohns has been very aggressive since I was diagnosed at twenty years old. I have been on every drug, literally and have been going to Mayo Clinic for the last four years, traveling 7.5 hours each way. My first surgery was when I was twenty two and I had a leak after surgery that took them three days of me complaining to find. They did an emergency surgery and I had developed sepsis and was told they couldn't guarantee I would pull through the infection and loss of bowel. They removed all but 180 cm of small bowel and gave me an illeostomy. So I'm fighting many things now besides my very active crohns in that I can't absorb nutrients. They have me currently on Stellara but it hasn't helped at all yet. I have been taking it for 7 months. I am having a colonoscopy locally here in late October and will be completely out under general anesthesia. I am scared to death and the only thing Ibhavent tried is legal medical marijuana. We live in Illinois. None of my doctors, here or at Mayo will approve or really even discuss medical marijuana. How do I get it? I am so overwhelmed with life and am so scared that I won't be here for my kids and husband ☹️. Struggling alot feeling depressed and am not sure what to do?!?! My Dr at Mayo really said there aren't any options right now for me but to try increasing Stellara to every four weeks...I haven't noticed any good things from taking it but instead have had skin issues pop up while taking it.

Thank you for any help or advice :)!

Amy
 
Illinois does have a MM program, and crohns is listed as a debilitating condition , so you're in luck there. go to : http://www.dph.illinois.gov/topics-services/prevention-wellness/medical-cannabis for more info. As to what kind of MM works best, it varies. In my case I find a high CBD oil in the daytime works well and doesn't get me high. (something like a charlottes web type of oil) I also use a THC indica oil about an hour before bed to help me sleep as the CBD tends to keep me up. But it does get me high, witch may or may not be a side effect depending on your perspective. I think oil products are better as they are absorbed in the gut, where the problem is I think it's important to buy from a licenced producer who states what percentage of THC and CBD are in the product they sell so that you'll know what your getting' and it will always be the same strength and purity. Keep in mind these are my opinions, YMMV. Hope this helps. Peace and love, Pete
 
If your state's medical marijuana program is similar to mine, I assume it is as easy as making an appointment with an alternative medicine doctor, and explaining your situation. Looking online, it appears that there are several clinics in the state that are specifically designed to see MMJ patients (such as this one:https://thehealingclinic.org/). If you pay their appointment fee, and explain your struggle to the doctor there, maybe mention all the different medications you've tried, and present some medical records, I have no doubt in my mind that they'll give you your MMJ authorization and from there, it's easy as finding a dispensary nearby and getting some flower or concentrates to help ameliorate your symptoms! I hope this helps! :)
 

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