Never ending nausea

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Even if it's to the point of driving one crazy enough to get themselves some help just to shut us up:)

Btw, the pentasa's working pretty well and I've been starting to feel better. Just having a hard time getting those horsepills down. Milk shakes made from ice cream and my lactaid milk seem to help them slide down a little easier though. Gotta update the doctor on wed. So, will see if she's got any suggestions for that.
 
yay!! Good for you :) I hope you continue to do well. I hated taking pentasa. 16 of those suckers a day was not good for me. lol I'm terrible at swallowing pills.
 
Yeah, 8 of those bad boys is hard enough! I'm pretty good at swallowing pills, but am becoming like a baby when these are concerned! Have a good day everyone:) Gotta feed my brats and head for work:)
 
I am still pretty much the same. Still got nausea and right side pain.
Went to the docs all my obs are normal.
Considering going back again today.
So very tired
 
Sorry Shazz:(
Was hoping we'd finally start getting you under control. Thankful that your obs are normal. But, we really need to do something about the nausea and the pain! I know you hate it, but need to do whatever it takes to get you better. Xxxxxxxxxxx
 
Hey Shazz :)

i haven't been on the forum properly for a few weeks so have just got round to catching up on this thread....read the bit after the surgery was done and thought 'yay!'....now I see you're not doing so good after all boooo :-(

hope the docs get you all sorted out soon xx
 
Hopefully i will be having my next op on the 2nd August so he can have a rumage around in there!
 
Emailed the doctor last night with my update. Plus, asked her about my having trouble getting those pills down. She emailed back this afternoon saying that she was glad to hear that the pentasa is working, so we'll stay on it for the course and will consider the imuran if need be. Says that she reviewed my tests seeing that I have no swallowing issues so to drink lots of water with those pills and do the best I can. Encourages me to call or message her with any questions or concerns which I'm thankful to hear:) Lisa
 
You're not kidding there! Showed them to a friend of mine at work and she said that they look like the size that you'd put up the other end! Guess whenever I can I'll be having my milk shakes. Really hurts my feelings during the summer:)

We're thinking the dosage of pentasa and prednisone will stay the same until the blood level on the backside goes down/away. Meanwhile, thanks manzy & 2thfairy, am thankful too that things seem to be getting better:) Hope it'll be the same way for all of you guys too very soon... :hug:
 
Still pretty much the same guys.
Got lots of aches and the start of a migraine.
Just waiting till Tuesday to see if they will let me have my next op.
 
Goodness :(

I hope you get the good news that you can go ahead and have your op in August!! You're so close to it.
 
Thought I would update you all on to days pre op assessment.
They have decided to postpone my op until the end of September. It is too soon after my gb op and my lungs are still recovering from the pe.
I have to say although I am a bit gutted I do see where they are coming from and it gives me more time to get a bit fitter before the op.
I am still aching but not as much as before. Still dizzy when i move and stand up.
Still soooo very tired.
At least I can enjoy the summer hols with my boys now.
Hope you are all well.
Xxxxxxxxxxxxx
 
Dagnabbit! This is not what is supposed to happen, Shazz! I hope you are able to enjoy the time with your boys. Don't do too much though.

Lots and lots of well wishes until September!
 
:rosette2:

I think giving your body a rest before the next surgery isnt a bad thing. Enjoy those summer holiday days!
 
Sorry Shazz that you have to have it postponed :( I was hoping you could get it over with and just get better!! Although, it probably is best for your body to wait.

big hugs to you from me and Sadie bear and I really hope you can get a little enjoyment out of the rest of the summer.
 
Just wanted to say hi and that I'm sending positive thoughts from across the pond. I'm doing chemo right now and I know how it feels to have the neverending fatigue while trying to raise two kids. I'm so tired of having to tell my daughter that I'm too tired to do stuff....It's effing frustrating and it's almost even more guilt-wracking that she's so understanding about it (my son is 10 months so he's good with just chilling on the couch with me =). I just wanted to let you know that you're not alone and obviously from all the posts we're all here for you.

All the best,

Kat
 
Sorry to hear that you've gotta wait so long to be taken care of. But, understand where they're coming from. Glad to hear that you're able to enjoy some time with the kids though. Take it easy and try to enjoy some relaxing time. Xxxxxxxxx
 
how you doing shazzy pants? I haven't been around much lately, but I have been thinking about you and hoping you are doing better. Big sadie bear hugs to you!
 
I am feeling so much better now. Have been out and about walking with the hubby and kids.
Even went to the gym on Sunday!!
Eating is still a bit of a problem in the evenings but I am managing OK.
Big big hugs back to you 2.
Hope everyone else is doing good.
Xxxxxxx
 
Yippeeeeee:) Glad to hear that you're feeling better! Hopefully the eating will come slowly for you too. But, baby steps.

Am doing alright too. Still getting the blood going on. But, stomach feels better and I do get day breaks without seeing any blood at all. Been pretty stressful workwise being scheduled shorthanded at night. We're looking forward to taking a couple weeks off for vacation at the end of this month and are both excited for the relaxation part of it. Busy part is my husband's cousin's wedding along with 4 long days of driving.:hug:
 
I am so happy to hear that you are feeling better!!!!! Thank goodness shazz!
Being able to walk and do light exercise does make all of the difference in the world!

i've been so-so, still trying to find out my problem since I'm apparently in "remission". Waiting for c-diff and some other tests right now.

Sadie is doing great! We're in the processing of our big move out to California and everything is a bit crazy and busy and stressful, but a couple more weeks and we should finally all 3 be out in California and be back together again to try to gain some sort of normalcy! :)

So glad to hear you are doing well!!
 
I started pentasa & stopped asacol. Have been doing well and even stopped taking pred a few days ago. Am currently on vacation with inlaws but will write more when I'm not worn out from the wedding & have more time. Hope you all are doing well too:) Lisa
 
As expected Shazz is fine and ready for the kids to go back to school!! I was glad to hear that she is alive and well!
 
I've been nauseated for about 3 yrs straight. Only 2 things have helped me: phenegran (makes sleepy) and the SCD diet, and I've tried about everything. Good luck!
 
ArinMelissa said:
I've been nauseated for about 3 yrs straight. Only 2 things have helped me: phenegran (makes sleepy) and the SCD diet, and I've tried about everything. Good luck!
Click to expand...

Welcome ArinMelissa :) Sorry to hear about that nausea. Hopefully eventually you'll get things under control as I have. In the meantime hang in there. Lisa :hang:
 
The wedding was a whirlwind of activity & got to admit that I didn't eat most times on the road as I should. Stomach let me know about it too. Husband's family is originally from India so the food which was plentiful was very spicy. Did my best to get the less spicy, closer to tummy friendly stuff although wasn't always successful. Made a couple of close runs to the bathroom.

Sunday night after the reception we brought Dad & his 2 aunts (who are almost 90) back to his house to spend the night. In the morning we had our old people alarm with them running the washer & talking loud to each other. Since mom's passed away dad's bathroom smells like a bachelor pad. I doubt he cleans his house much & the house he lives in is from the 30's so walls are thin & you hear everything. We survived though & are glad to be home. Wedding was beautiful & we're glad we were able to go. Now onto the relaxing part of vacation!
 
Glad you had such a good time!

I hate when walls are thin and people can even hear me just think about pooping lol

I hear you about the eating on the road thing. I'm on my way driving to California right now from Kentucky. I finished my 2nd day on the road today, but haven't been feeling well to begin with, so yesterday I starved myself and forgot to drink much so i really hurt myself doing that :( it wasn't intentional, i just wasn't well enough to eat, and then not trying to eat or drink made it all so much worse!! I did things differently today though. Still not doing the greatest, but I at least am not afraid I'm going to faint anymore.

Enjoy your vacation!!! :) I hope you have a great time!!
 
Know what you mean. But, with my father-inlaw's bathroom stinking like it did (not actually from me) I'm determined to bring some air freshner with us next time we go. He did have some fabreeze that I used even though I don't think he uses it regularily. :stinks:

Unfortunately, not all of our vacation is leisurely. We cleaned the fridge today and have a few things around the house that have been neglected. But, will take time to relax too:)

Take care of yourself on your trip Manzy. Thankfully for the most part other than not eating right while traveling I did well. But, also remember what it's like to be on the road while you're not feeling so good. :( Keep safe and I'm sending hugs your way. :hug: :hug:
 
Hey Shazzy!! How you doing?? Have you had your reversal?

I wanted to check in. I've been gone a bit with all this moving and crap going on. Hope you are doing well!!
 
I was thinking of you early this morning, Shazz, and wishing you were around. Hopefully this means you are keeping busy with your boys. :hug:
 
Been missing our nagging club :( How are you doing Manzy?

Within the last few weeks I stopped seeing blood anal wise! First time in a long time without any blood. Still gotta be careful, but for the most part I'm doing alright:) Found out that I don't do well with walnuts. But, even though I paid for it for a couple days I didn't end up in a flare.

Am saying goodbye to the HMO at the end of the year and will be trying a PPO which should be a little cheaper. A little apprehensive about it, but hopefully going with the PPO will actually turn out to be a good thing...
 
Glad to hear you are doing ok!

I'm ok. Having a rough time, but I'm still trying to adjust to this move to california an is haven't had a tysabri treatment in almost 3 months because of insurance mishaps and stupid red tape from all these guidelines with the TOUCH program. I finally have an appointment with my new GI next Tuesday do hoping thy goes well and he can get me started back on the tysabri. So we'll see! My life is always in a constant state of chaos :)
 
On the plus side.... We are about 15 minutes from the beach and Sadie and I go often :). She loves it there. Definitely good for our souls :)
 
Sorry to hear about that. Hopefully things will start turning around for you. Glad to hear that the beach is good for you. :hug:

I too am thankful to finally be able to start feeling more like myself again. It's about time, especially after 2 years.

How are 2th & Terriernut?
 
I'm with flu, an uninvited guest! Currently reacquainting myself with my sofa! So glad to hear you are doing well!
 
Things are groovy here. I've finally experienced my first blowout while asleep and then a just a few days ago had my first leak onto clothing--apparently had a hole in the bag. Luckily, both instances were minor and were quickly remedied. However, I have now popped my stoma life experience cherry. Yea, me! hahaha!!
 
I know how you feel Terrier. I seem to have an ongoing cold here. Frusterating thing is that once I think I'm getting done with one cold, I come down with another. :ybatty:
 
No, havent heard a peep from Shazz.

I'm recovered from the virus now thank you. It was more a throat thing and high fever. Thankfully had a flu shot or probably wouldve been worse.
 
:well:

Usually if we send a personal message it'll show up on her email right Misty? If so, we could flood her with threatening emails telling her that we miss her and hope she's doing well...
 

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