new from Ethiopia
helloo all
i am living wiz CD in Ethiopia.i am 25 MALE
HERE IS MY SHORT STORY,
i am glad to share my story with u all that was published on Australian crohn's and colities association.
i get this sie when i read the NACC megazine and get Anasacia information and get here to be a family with CD friends, i am alone here it is not common ,so hard for me really .
here is my story .
i love to hear from u too
IBD Type: Crohn’s
Most difficult experience(s) with IBD: I feel isolated, lonely, and at times as if I am being punished. I feel like I live in the middle of all the hardships of this world and wonder how long I carry on without good care and treatment. I think like I lost my all dreams (like education and to stand on my feet more and be like my friends). The future seems dark and even I hate to live sometimes.
My Tips: Happiness keeps you sweet; trial keeps you strong; sorrow keeps you human; life keeps you humble, but only God keeps you going so try and live with all your problems.
My Story: I was diagnosed with Crohn’s disease in 2001 and I have had fistulas twice. To live here it is one of the most backward and poor countries, especially in medical care. It is much worse for Crohn’s patients like me. It can be hard in developed countries, let alone here. My follow-up is in a public hospital in the capital. It’s a referral hospital so many patients come here from different parts of our country. There are not enough doctors to accommodate the number of patients. Crohn’s is not common here so the doctors have limited practical experience in knowing how to manage me. There are very few GP’s and most work out of private hospitals. It is very difficult to get them in public ones. My follow-up when I am very sick is a gap of every 4 or 5 months and is due to the amount of patients. I usually get a student doctor and the problem is difficult for them. They tell me a lot of different suggestions and more than my capability to understand. It makes me feel confused, upset, and this makes things more complicated.
When my Crohn’s flares-up, it is such a long time before I have an appointment to see the doctor. It is a very rough wait. There are no facilities for colonoscopies, blood chemistry, or biopsies, and so we have to wait for private help. There are often patients with cancer, leukemia etc, which are major problems so it is not only me. Private hospitals are also very expensive. If you do not have money, sooner or later death happens. We are all human and deserve good things. I struggle to buy my medicines for my Crohn’s and the doctor wants me on other medication.
My Crohn’s is located at the join of the small intestine and large intestine and due to inflammation I have a caecal mass and narrowing of the bowel which needs surgery. I am in a lot of pain despite pain killers and cannot sleep properly. At night time I try to sleep on my left side and on my chest because the right side makes the pain more severe. I have anaemia and need transfusions of blood. The blood levels are so low I have collapsed. I was told this may attack my heart or brain. I am also underweight and nutrition is a problem too. My heart beats a lot and I am very tired.
I am writing this myself and do not want to tell others or ask advice for my story because most of the people here think on the negative side. They really love to talk bad about things and about other people’s health problems. They say it is God’s punishment and that he must have sinned and that’s how he got this problem. I know that I was just a kid and have not made a mistake or done anything wrong. God has given me courage and strength to handle things and to be strong. They are wrong and I advise them to think about themselves, as life has no guarantee. We will not know what happens to us in the future. This feels good to write about my inner feelings for others who understand. It makes me happy. I hope that maybe you don’t get these kind of problems because most of the people there are educated and understanding of things in a positive way.
RESPECT
MRE
helloo all
i am living wiz CD in Ethiopia.i am 25 MALE
HERE IS MY SHORT STORY,
i am glad to share my story with u all that was published on Australian crohn's and colities association.
i get this sie when i read the NACC megazine and get Anasacia information and get here to be a family with CD friends, i am alone here it is not common ,so hard for me really .
here is my story .
i love to hear from u too
IBD Type: Crohn’s
Most difficult experience(s) with IBD: I feel isolated, lonely, and at times as if I am being punished. I feel like I live in the middle of all the hardships of this world and wonder how long I carry on without good care and treatment. I think like I lost my all dreams (like education and to stand on my feet more and be like my friends). The future seems dark and even I hate to live sometimes.
My Tips: Happiness keeps you sweet; trial keeps you strong; sorrow keeps you human; life keeps you humble, but only God keeps you going so try and live with all your problems.
My Story: I was diagnosed with Crohn’s disease in 2001 and I have had fistulas twice. To live here it is one of the most backward and poor countries, especially in medical care. It is much worse for Crohn’s patients like me. It can be hard in developed countries, let alone here. My follow-up is in a public hospital in the capital. It’s a referral hospital so many patients come here from different parts of our country. There are not enough doctors to accommodate the number of patients. Crohn’s is not common here so the doctors have limited practical experience in knowing how to manage me. There are very few GP’s and most work out of private hospitals. It is very difficult to get them in public ones. My follow-up when I am very sick is a gap of every 4 or 5 months and is due to the amount of patients. I usually get a student doctor and the problem is difficult for them. They tell me a lot of different suggestions and more than my capability to understand. It makes me feel confused, upset, and this makes things more complicated.
When my Crohn’s flares-up, it is such a long time before I have an appointment to see the doctor. It is a very rough wait. There are no facilities for colonoscopies, blood chemistry, or biopsies, and so we have to wait for private help. There are often patients with cancer, leukemia etc, which are major problems so it is not only me. Private hospitals are also very expensive. If you do not have money, sooner or later death happens. We are all human and deserve good things. I struggle to buy my medicines for my Crohn’s and the doctor wants me on other medication.
My Crohn’s is located at the join of the small intestine and large intestine and due to inflammation I have a caecal mass and narrowing of the bowel which needs surgery. I am in a lot of pain despite pain killers and cannot sleep properly. At night time I try to sleep on my left side and on my chest because the right side makes the pain more severe. I have anaemia and need transfusions of blood. The blood levels are so low I have collapsed. I was told this may attack my heart or brain. I am also underweight and nutrition is a problem too. My heart beats a lot and I am very tired.
I am writing this myself and do not want to tell others or ask advice for my story because most of the people here think on the negative side. They really love to talk bad about things and about other people’s health problems. They say it is God’s punishment and that he must have sinned and that’s how he got this problem. I know that I was just a kid and have not made a mistake or done anything wrong. God has given me courage and strength to handle things and to be strong. They are wrong and I advise them to think about themselves, as life has no guarantee. We will not know what happens to us in the future. This feels good to write about my inner feelings for others who understand. It makes me happy. I hope that maybe you don’t get these kind of problems because most of the people there are educated and understanding of things in a positive way.
RESPECT
MRE
anda:
