New girl (updated 1st Oct)
Hi everyone, just joined the forum, I can see I'm going to be spending sometime here! I'll start with my story, and will try to keep it short.
I was already ill with ME when my IBD started at 19. The only time I would keep food in was lunchtime as I was so empty. GP gave me colofac an, Lopermide, taking 6 of those a day just to keep food in. I had abnormal blood tests and a normal endoscopy and was told I had IBS. Despite reporting symptoms such as night attacks and heavy sweating during attacks. Given amitryptiline, which did allow me to eat fairly normally but that was it.
Last year at 23 I woke up with a swollen upper arm. This has turned into a painful upper arm, shoulder, neck and back around that area. Tests and more tests passed 6 months and was sent to a Rheumatologist who went into my whole medical history. Luckily he ordered a WBC scan of my digestive area which surprise surprise revealed inflammation in the bowel. He sent a report to Gastro a month ago and still waiting to hear from them, also waiting to hear about Physio in the meantime to try but I don't hold out much hope.
Can't do an awful lot. I am always in pain with the shoulder and it has gotten bad. The fatigue is just awful, I am up at 9am, back to bed 3-6 pm sleeping (struggle to get up from that honestly) and then I go back to bed anytime from 10:30pm onwards. Often watch a dvd for a few hours then go to sleep. I read alot of books, use the internet and watch dvds to keep occupied as I can't always make it out the bus stop is a fair walk (to me anyway, and sloped upwards on the walk home). The IBD symptoms beginning to run away from me so made the decision to stop eating out which I mainly did at lunchtime. Sticking to 3 meals a day of similar foods helps minimise symptoms.
My social life is non-existent and had rarely manage anything like Cinema (i was going 4-7 times a month, unlimited card!) as i'm just too tired and in too much pain to get the bus there and back. I do have a small volunteer job which I do mainly from home.
Well i'm sorry that was so long, but I look forward to having a look round the forum and meeting you all :
Hi everyone, just joined the forum, I can see I'm going to be spending sometime here! I'll start with my story, and will try to keep it short.
I was already ill with ME when my IBD started at 19. The only time I would keep food in was lunchtime as I was so empty. GP gave me colofac an, Lopermide, taking 6 of those a day just to keep food in. I had abnormal blood tests and a normal endoscopy and was told I had IBS. Despite reporting symptoms such as night attacks and heavy sweating during attacks. Given amitryptiline, which did allow me to eat fairly normally but that was it.
Last year at 23 I woke up with a swollen upper arm. This has turned into a painful upper arm, shoulder, neck and back around that area. Tests and more tests passed 6 months and was sent to a Rheumatologist who went into my whole medical history. Luckily he ordered a WBC scan of my digestive area which surprise surprise revealed inflammation in the bowel. He sent a report to Gastro a month ago and still waiting to hear from them, also waiting to hear about Physio in the meantime to try but I don't hold out much hope.
Can't do an awful lot. I am always in pain with the shoulder and it has gotten bad. The fatigue is just awful, I am up at 9am, back to bed 3-6 pm sleeping (struggle to get up from that honestly) and then I go back to bed anytime from 10:30pm onwards. Often watch a dvd for a few hours then go to sleep. I read alot of books, use the internet and watch dvds to keep occupied as I can't always make it out the bus stop is a fair walk (to me anyway, and sloped upwards on the walk home). The IBD symptoms beginning to run away from me so made the decision to stop eating out which I mainly did at lunchtime. Sticking to 3 meals a day of similar foods helps minimise symptoms.
My social life is non-existent and had rarely manage anything like Cinema (i was going 4-7 times a month, unlimited card!) as i'm just too tired and in too much pain to get the bus there and back. I do have a small volunteer job which I do mainly from home.
Well i'm sorry that was so long, but I look forward to having a look round the forum and meeting you all :
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