New here, struggling.

[Crohnscantstopme]

Hello, everybody. I'm a first-time poster, long-time reader. My name is Tiffany, I'm 27, and live in Missouri. I have been diagnosed with Crohns for about 4 years, and its gotten progressively worse with time. I have a 7 month old son, and since he's been born, I have been stuck in a terrible flare. I can't get it under control. I have done The Maker's Diet and probiotics, which helped a little, but eventually didn't. I have no insurance right now, so my options are quite limited. The only meds I can afford are prednisone, which has been the only thing sustaining me. My GI doc recently left his practice, I went to a convince clinic a couple times to get prednisone and just started seeing a new doctor. He says he can't do much for me without insurance and I'm feeling hopeless. I just applied for the Remicade patient assistance program. I hope I am accepted. Every day I am in pain, I have lost so much weight, it's hard to care for my sweet son. I want to get better for him, and for my fiancé who has been so patient and caring through all this. Without them, I honestly am not sure I'd continue to live, knowing I will have this damned disease the rest of my life. I am getting so depressed and starting to feel worthless and like a burden to my family. I know you guys understand. I'm not sure anyone else does that hasn't been there. Just looking for some support and hopefully make a few new friends. Thank you for reading.

 

[Chicken1983]

Hi I'm Lian 29 new here too first post xbeen diagnosed since 2008 with Crohn's disease I too am in a constant flare and am waiting for remicade luckily I'm in England with the NHS so can do that easily enough all my pills no longer work even predisilone 8 a day that I'm on now have made the pain almost bearable but the side affects are awful and I too feel like no one gets just how awful it makes you feel I love reading stories similar to mine on the forum now I have got to the point of I'd do anything for a giant pain free dinner with no aftermath. I hope you get some comfort knowing someone else is going through it as well x I'd love to take time off work to just sleep and lay down but financially it's impossible hope you get a solution to your worries soon xxx

 

[Danico85]

loosing out on treatment because they are too expensive is in-humane.
i live in scotland and get all the best medication for free. Its a joke that if you live in a country as medically advanced as america you cant get the beds treatment because of your income.

im horrified

 

[Crohnscantstopme]

Thanks for reading guys. I agree. I wish I lived somewhere where health care was available to all, regardless of income. It's terrifying to live with this disease and no insurance. It would take us literally years to pay off one trip to the ER, so I've learned to just deal with my pain, even when it's practically unbearable. I'm so glad you gguys can get the care you need, though. This disease is not easy for anyone. Hope you're feeling well today. Thank you so much for your kind words.

 

[ktp112]

I can definitely relate in feeling helpless and hopeless... I've been dealing with chronic pain for the past two months while waiting for remicade to start working... My doc basically told me all I could do was wait it out and that made me feel really helpless.

It's terrible that you can't get the treatment you deserve because of stupid insurance... No one should ever have to deal with that. It's so unfair, especially for someone that's suffering as much as you are... I don't know how you feel about "alternative" medicines, but in a lot of cases these methods can be significantly cheaper. And while they may not be as beneficial as something like prednisone during a severe flare like you're having, I've heard success stories from a number of people who are relying primarily on natural or alternative medicines. Also, I don't know how you're eating, but a diet reform is a really easy way to potentially reduce symptoms without medication... I really hope you feel better and just know that there are always people here to support you and answer any questions you might have!

Kyle

 

[ktp112]

Also, you can't EVER let yourself think that you're a burden to others because of your disease... I get that way sometimes so I know exactly how you feel. But, you just cant get those kinds of thoughts in your head. Your family loves you unconditionally and would never want to hear you say that you feel worthless or burdensome. No matter what happens, how glum things get or how terrible you feel, your friends and family won't ever think you're a burden. I'm sure that they're amazingly happy to have you be a part of their lives, regardless of the fact that you have Crohn's!

 

[Chally2]

I agree with Danico85 I also live in Scotland and get all meds and treatment for free why must you have insurance for treatment!