New Infliximab infusion :(

[Elle-GaGa]

Hiya all

Ive recently started an Infliximab Infusion at Torbay Hospital. I have to go there every 8 weeks for 5 or 6 hours. The nurses are saying it's a built up effect and will start to work after a few treatments.

Is anyone else on this infusion?
How long did it take to work?
Are there any other problems that come with it?

Sorry for all the questions, I'm just interested and curious

 

[danman]

Hiya Elle,
I was on Infliximab for 1 and half years.

Pen is right, it's the same as Remicide, as described in the other thread.

I found relief about 2 weeks after my first infusion. Then I would go into a cycle. About 1 week before the infusion and 1 week after, I would get symptoms.

I had no side effects while I was on it, but unfortunatly, I had a small seizure while getting my last infusion, so I was taken off it.

Healthwise, it was the best 1 and half years I'd had in a very long time.

 

[GI Joe]

Remicade has worked wonders for me. I have never had any side effects. I started seeimg my symptoms get better after about two weeks of my first dose. I had been in a constant flare for years prior to starting Remi and now I am in "remission". I hope it works as well for you

 

[Elle-GaGa]

Thanks for your replys guys

Looks like the drip works pretty well then... hope it works as good with me

I got another one in 3 weeks time, will be my third.... start working soon I hope

 

[sahdot]

Hi Elle I have been on Infliximab for 18 months and has changed my life, it took about 4 infusions before I really noticed a difference. I have mine every 8 weeks and would notice that the week before I would start to have a few troubles with my bowel and then after 2-3 days of the infusion would be a lot better. You also have to have a good diet as this helps. I am also on Methatrexate which I take weekly and found that if I took that on the same day of the Infiximab I would have very bad diarreah so now avoid the infusion on the same day, a day either side I am well. I have had crohns for 22 years and over the last 2 years, with 4 ops in that time the last was last January. I have studied diets and medication a lot over the last 18 months and now am a new man. I am lucky to have great support from my wife since I was diagnosed and also have a great IBD specialist nurse and gastro Dr. Please feel free to ask if you need any more help, advise or support. Good luck with the treatment