New Member from Quebec

[Since13]

Hi everyone. Just joined this morning.

My story. I was diagnosed at 13 with Crohn's. I have never really been on any meds except Imodium. Never on sterroids. Been operated on twice to remove a portion of my intestine. Have basically been in remission since the operations. I am able to function normally, only issue being the # of times I go to the bathroom.

My doctor recently put me on Entocort and Imuran. Kind of scared of the side effects as reading up on these 2 meds scares the crap out of me, but if it keeps me in remission, I guess its something I need to do.

 

[Dr.Who]

Hey, im also from Montreal.

Who is your doctor, and at which hospital?

i have crohns,
am taking humira.

cheers.

ps: someone add our new friend to the crohns geo map!

 

[Angrybird]

Hello and :welcome: to the forum. I too am on Imuran (aka Azathioprine) and so far so good, I will keep my fingers crossed that it does the job for you! Do have a nosy at the Imuran sub forum to get further info and support about taking this med: http://www.crohnsforum.com/forumdisplay.php?f=64.

Wishing you all the best hun, let us know on how you get on.

AB
xx

 

[David]

Hi Since13 and welcome to the forum

I read another post you made where you stated that the information this forum is providing is scaring you. I think it's easy to feel that way because a lot of the information out there IS scary. However, another perspective to take is that educating yourself about all of this, while a bit scary, is what will greatly increase the probability of the scary stuff not happening. If you become so educated that you can advocate for yourself and ensure you're getting the care that you deserve, then the chances of something scary happening goes down.

For example, before you go on the Imuran, are you getting TPMT testing done? Have you had your vitamin B12 levels tested since you have CD and resections? Is your doctor planning to monitor your CBC levels weekly once you go on the Imuran? If you don't know the answers to these questions and don't know why I'm even asking them, then that showcases the power of community-powered healthcare. All of that stuff is proactive to help ensure bad, scary stuff doesn't happen in the future. Because stuff actually happening is a hell of a lot scarier than learning that there is a small probability that it might.

We're here for you

 

[Since13]

Appreciate the words David. I have been on B-12 for a few years. My bloods were taken before I started the meds and will be every week for the first month or so. Meds don't really scare more than the side effects that may come with it, which all the bloods in the world won't help. You either are lucky to have no effects or you get them.

From what I am reading here though, most people are in really bad shape and need to be on these meds. My case is a bit different. I'm not in bad shape at all. I feel fine. Only issue I have is I go to the bathroom often and my dr sees markers in my blood that indicate the disease is coming back so he wants to nip it in the bud before it gets worse.

Don't get me wrong. I came here to seek info. And its nice to see that I am not alone with fighting this.

 

[David]

It sounds like you probably have a REALLY good doctor who keeps a great eye on you. THAT makes a HUGE difference and it let's you put full trust in that doctor to do what is right if that's the way you want to handle things. Others of us feel like we have to know every minor variable so we can ensure we get quality care.

We certainly have some very sick people here, yes. But we have plenty of others in the same boat as you or in complete remission. I find that those who are doing absolutely amazing often don't spend as much time here because they're off living the good life

I hope those markers head the opposite direction for you soon!