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Crohn's Disease Forum

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Dec 20, 2009
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Hello wonderful people!

So i just thought i would introduce myself as i am a brand new member here, i discovered this forum today and i love it already but theres soo much to read here!

I would just like to point out that im not looking for sympathy here (mainly because i dont have a very severe case of Crohns) i am just telling my story, which im sure some people could relate to.

I am 19 and I was diagnosed with Crohns last month. I am actually quite ashamed that I hadnt heard about the condition before i was diagnosed with it, although i would blame the government as well as myself for that. The first thing i did was to start pitting myself over it. But i was wrong because i didnt realise how lucky i am, even though im so young and ive been labeled with the horrible disease which i have to live with for the rest of my life. On the plus side however, I was diagnosed very quickly, i had a fissure and so had to go to my GP who them referred me to a consultant. I saw the consultant and i was incredibly lucky because i was able to go in for a colonoscopy the very next day (as someone else had dropped out) and she then told me i had Crohns. To be honest I hadnt expected it at all and was in no way prepared to hear something like that because before the colonoscopy we thought it was just hemorrhoids as I havnt had the really serious symptoms like bloody diarrhea stomach pains and such. I was also told me that I am probably at a very early stage. Thats why i consider myself to be lucky. But when i read accounts from other people with CD i am terrified about how i would cope if/when the more severe symptoms start to kick in. I am now on steroids for 3 months, an idea which i found very difficult to get used to because i generally dont like conventional medicine or any sort of chemicals or hormonal drugs that interfere with the bodys natural systems.
Sadly the most difficult thing for me to get over is food. I love food! Dont get me wrong, im not obese, I have a healthy BMI but i love being able to eat whatever i want, whenever i want, in reasonable amounts of course. But now that ive been diagnosed I have to watch what i eat, and i dont really know what i can and cannot eat yet. Some of my favourite kinds of foods have disappeared from my fridge and its really hard to deal with it, especially since i have no real symptoms and it feels like im depriving myself for nothing.

Thanks for taking the time to read this
 
Welcome to the forum!

It's good that you have caught things early before too much damage has been done! You will learn as you go about what foods to avoid, it seems everyone is different in that respect. One reccommendation is to cut down or cut out on sugary foods which I have been struggling with but you get used to it!
 
Welcome!! First of all we can't know about all diseases... I have heard of many but don't know the first thing of their pain, frustations, and their future. Crohns doesn't have enough awareness, although there seems to be alot more because anyone can get it, anytime. If there is a hereditary marker, it is something that can't be ignored that someone in the family could have a symptom of IBD. 30 years ago I knew at the first dx was it was a Jewish disease, which of course is not the case.

I know of the food thing, I am a tad overweight but losing some to become more active and healthier, and since then my Hiatus Hernia and Crohns has drastically changed. I am with you on the drug thing I hate it but I also hate pain and after many years of having this disease it can wear you down.

You may never suffer what others have, some have it severe and some mild, I take VSL#3 and it helps me as well as others, so everyone is different, and try not to buy the cart before the horse, you could be just fine!
 
:welcome: You are so fortunate have such a quick diagnosis. Although right now I'm sure you don't feel fortunate to have this disease. It will take some time getting use to it. It doesn't necessarily mean you have to totally change your lifestyle. You will find what works best for you is the way to go versus what works best for others. That is the tricky thing about this disease...It is NOT one size fits all....Please ask as many questions as you need to, there are many knowledgeable and supportive people here to help.
 
Welcome!
i have just recently joined the forum myself, as i am currently seeking diagnosis for all sorts of GI symptoms, and have found the board to be a wealth of knowledge, and friendly people! :)
 
Welcome to the forum and I'm sure you'll find lots of great info for your questions here. I am still young too and I know that I've found I'm embarassed stating some of my symptoms to doctors and even on here too so a couple things to remember on here. I've only had it for 2 years now and I haven't read anything about the colour, consistency or make-up of my bowel movements so feel free to mention these if you need to without embarassment. Also any questions you have no matter how small, complicated, or long ask away and almost always somebody has something to say.

You said it freaked you out with a lot of the things you've read on here and around the internet. I hope you don't think that Crohn's= surgery and pain for life. Thats quite untrue actually.

You won't have to give up all food so don't worry. I suggest maybe a "food diary" where you keep track of what you ate and how you felt after. This will help you figure out what your staple foods are when you aren't feeling well and what you won't tolerate at all. Pasta's are my staple, ice cream is the other end of the spectrum.

I wish you the best of luck getting everything together and have a great holiday season!
 
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