- Joined
- Jun 16, 2018
- Messages
- 1
Good afternoon!
I want to share my story and current status in hopes that others may have similar experiences. I’ve had IBD my entire life. Several ER visits and misdiagnoses throughout my childhood until finally I was given a lower GI in 2005 and officially diagnosed with Crohn's in the lower intestine and colon (moderate to severe).
I was on Pentasa and went into remission for years aside from Prostate issues.... then hit again in 2014. I was in Charlotte NC found a new GI did the test again... same diagnosis as 2005 and same severity/area... now I was on Llialda and budesonide. Things were going well until about 6 months ago.
My symptoms never quite matched those of others in this forum. Instead, in some cases yes, but my definition of an “attack” was much differe Than most of yours. Yes I had blood and mucus at the bad times, but my troubles came mainly after going to restroom. I would later find out that this is chronic Prostatititis. Doctors refused to link the 2 together, but I know better. One urologist did agree with me, saying she believed that the Crohn's bacteria and inflammation triggered the inflamed prostate. Attacks were/are a nightmare. When I feel it starting I get in hot water and hold on for the ride. Could be 15 mins could be 4 hours. I have passed out 2 times from the pain.
In the past year, the prostatitis attacks seemed to slow, I had some kidney stones (first ever) , and suddenly I have more classic Crohn's symptoms. The burning, thin stool, etc. I’m 35, wanting to figure out how all of this is linked together and also wondering if my Crohn's is starting to spread to upper GI areas which would explain my new flare symptoms. Saw my GI last 3 weeks ago and was not impressed so I am switching. Looking for one in Winston-Salem NC area
I want to share my story and current status in hopes that others may have similar experiences. I’ve had IBD my entire life. Several ER visits and misdiagnoses throughout my childhood until finally I was given a lower GI in 2005 and officially diagnosed with Crohn's in the lower intestine and colon (moderate to severe).
I was on Pentasa and went into remission for years aside from Prostate issues.... then hit again in 2014. I was in Charlotte NC found a new GI did the test again... same diagnosis as 2005 and same severity/area... now I was on Llialda and budesonide. Things were going well until about 6 months ago.
My symptoms never quite matched those of others in this forum. Instead, in some cases yes, but my definition of an “attack” was much differe Than most of yours. Yes I had blood and mucus at the bad times, but my troubles came mainly after going to restroom. I would later find out that this is chronic Prostatititis. Doctors refused to link the 2 together, but I know better. One urologist did agree with me, saying she believed that the Crohn's bacteria and inflammation triggered the inflamed prostate. Attacks were/are a nightmare. When I feel it starting I get in hot water and hold on for the ride. Could be 15 mins could be 4 hours. I have passed out 2 times from the pain.
In the past year, the prostatitis attacks seemed to slow, I had some kidney stones (first ever) , and suddenly I have more classic Crohn's symptoms. The burning, thin stool, etc. I’m 35, wanting to figure out how all of this is linked together and also wondering if my Crohn's is starting to spread to upper GI areas which would explain my new flare symptoms. Saw my GI last 3 weeks ago and was not impressed so I am switching. Looking for one in Winston-Salem NC area
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