New to Crohn's

[stephy513]

Hi everyone,

I have been just diagnosed with Crohn's, even thought my tests show I have been suffering for about 6 or 7 years. When I got the diagnosis I was so RELEIVED to finally have an answer that I didn't care what the cause was, just that I finally knew.

Now I am about a month into treatment and kind of overwhelmed with the amount of pills and frequency I have to take them. Anyone else get this feeling when they started on the 4x a day pill regimen? I am used to once a day because of other prescriptions I am on, but this is daunting.

Anyway, I am hoping this forum helps a bit. I am not a "Debbie Downer" type, so I will probably only read or respond to the positive and hopeful threads. If I read too many bad one, my anxiety and depression with most likely flair up, and I don't need that on top of everything else.

Thanks!

 

[scottsma]

Welcome to the forum.When you're first diagnosed it can be overwhelming and I think a lot of people find that is so.But hopefully your meds will make you feel better and it will become second nature.We have a "young adults" thread which you might want to have a look at.Keep positive.Lots of people get their symptoms under control and stay in remission for a long time,sometimes years. Fingers x'd. for you.

 

[DJW]

Hi and welcome.

It can be overwhelming but you will adjust. Regarding all the meds; check with the pharmacist to see if any or all can be taken all at once. I take all my meds with breakfast.

Sending you my support.

 

[stephy513]

@scottsma - thanks for the advice on the "young adults" thread, but at 31, almost 32, I don't quite fit in over there.

Though reading the TTC and Preggo forums, that definitely had me concerned for when we get to that point.

What's crazy is I didn't even know I was suffering, I just knew something was off. I went through having a scope and lower GI xrays about 3 yrs ago, but the doc at the time didn't make it far enough into my colon and just assumed all was well. Definitely frustrating. At least now I know what's going on and I'm not crazy. Or that my body hates me.

 

[Justanothercp]

Stephy513,
What med are you taking 4x/day?

 

[stephy513]

Pentasa

 

[crohns97]

Hi there. Totally understand about not needing anymore stress. You will get used to taking ur meds as time goes on. I was on pills for my crohn's but they didn't work I am now on shot every other week.

 

[Justanothercp]

Stephy,
Sorry took so long to get back (apparently crohns forum is getting dumped into my spam)

I used to take pentasa (asacol) 4x/day, but got switched to Lialda, which is only daily. Worked for me. If 4x/day is big issue, maybe talk to md....