Hi everyone. I am new to the site and have found lots of helpful info here. I am a 36 year old mother of three boys. I started having stomach issues when I was about 19 years old and spent countless nights in the ER because of the pain I was in. The type of crohn's I have is in small intestine and basically I have the opposite problem of most, which is severe constipation. I just never GO! I have a "road block" so to speak, that stops my flow of traffic which causes me to vomit constantly when I am flaring. The pain is unbearable and I can't function at all. I spent many countless years not knowing what was causing all this pain. Had my appendix removed in error because they thought that was what was wrong. Not a week later back in hopsital. More pain meds for temporary relief, then sent back home with no answers. When I was about 28 I finally told my primary dr I could take no more, so she sent me to GI. Had a colonoscopy and upper GI scope. After that, a barrium x-ray, which is where my crohn's was discovered. Was put on entocort at that time which worked fairly well for me at that time. Last week, I had worst flare that I had in a long time and ended up back in the ER for 3 days. Had another barrium x ray where they found a fistula by my colon, and a complete blockage. Luckily, as of now I don't need surgery but am on prednisone, hydrocodone, and anxiety meds. Dr wants me to start remicade, so am getting my blood work done this week to make sure I am good to start the treatments. I am just hoping and praying this will work for me!! I have been miserable for a long time and am ready for relief!
Anyway, that's all for now. Thanks for listening and any tips or advice, opinions on your remicade experience would be appreciated!
Anyway, that's all for now. Thanks for listening and any tips or advice, opinions on your remicade experience would be appreciated!
