New to the Club!

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Joined
Jul 16, 2014
Messages
4
Hi everyone,

My name is Maureen and I'm 26. I've been experiencing GI problems for going on 2 years, starting in January of 2013. When it all began, I was noticing blood in my stool (which I knew, even without a medical degree, was a BAD SIGN). I went to campus urgent care, where they first thought I was having hemorrhoid problems. After attempting to treat that with no results, the doctor recommended me to a gastroenterologist. He in turn scheduled me for a colonoscopy, where they found evidence of ileitus and colitis. But apparently it wasn't enough to fully confirm a diagnosis of Crohn's (I wasn't displaying many of the typical symptoms...diarrhea, rapid weight loss, etc.) My doctor recommended I go on the SCD diet, eliminating grains, lactose, and sugar (booo). This seemed to help for a while, until I guess I got comfortable and started enjoying those not-so-healthy foods again. My pain and blood resurfaced in June or July of 2013, and I went in to see my primary care physician. He put me on 40mgs of Prednisone daily, until I could get in to see my GI doc. My GI doc seemed a bit upset that the primary care doc put me on such a high dosage, but he went with it and just planned a taper that lasted about 2 or 3 months (hard to remember now). And to be honest, I felt FABULOUS on the prednisone. I had more energy, my weight was stable (surprisingly), and I started to feel like myself again. Once the taper ended, I felt withdrawl-like symptoms, but then felt fine. I felt like maybe I was in the clear.
That was, until a few months ago. I'm a doctoral student, and during my stressful qualifying exam period, I ate horrendously. Naturally, I started feeling uncomfortable once again. But the exams ended, and I figured with more time on my hands my diet would get back under control. I know stress is said to have a lot to do with Crohn's symptoms, and after the exams I immediately began preparing for a big move (which was only completed a few weeks ago. The night before my move, I ended up in the ER and the docs put me on a 6 day taper of methlyprednisolone. It helped, for a little while. But now I'm back to feeling crummy and have an upcoming appointment with a new GI doc at the end of the month.
That said, I'm having a hard time now because this move was a big step for me. I moved in with my boyfriend of 4 years, and we've been long-distance our entire relationship. I feel like a terrible girlfriend because my pain is keeping me pretty much tied to the couch. We can't even enjoy the fact that we're finally in the same city, let along living together! Plus I'm not working yet, as I haven't had the energy to deal with the sickness plus apply for new jobs. So not only am I a lazy bum roommate, but I'm also a financial burden as he is stuck paying for all our rent and utilities. He's handling everything with grace and I feel incredibly fortunate, but at the same time I feel horrible for dropping this problem on him.
I'm looking forward to reading more of the posts on this forum to hopefully learn ways that I can help myself, but I definitely feel the need for some emotional support and this seems like a really fantastic place for that. I look forward to getting to know you!
 
Hi Maureen, welcome to the forum! One thing that jumped out at me from your post - you mentioned they found both ileitis and colitis. Did they take biopsies when they found that inflammation? It sounds to me like if they've already found inflammation, then hopefully a diagnosis is near for you. I presume that you'll have more tests after you see the new doc? Good luck with the new doc, I hope you can get some answers so that you can treat this effectively! Keep us posted on how it goes.
 
Hi Cat,

Yeah, they took biopsies during that first colonoscopy, but apparently didn't feel 100% confident in calling it Crohns? I'm not sure why. Hopefully this new doctor will have more answers! Thanks for your reply and support to everyone in this group. Cheers!
 
Hello and welcome to the forum!

Unfortunately crohns is one of those illnesses that can be really hard to pin down, there are so many things that they still don't really know about it which makes getting diagnosed really difficult for some people. I know that its hard when they don't give you a straight answer, but we're all behind you so if you have any worries or need a rant then please feel free.

As for the situation with your boyfriend, take a look at this thread - http://www.crohnsforum.com/showthread.php?t=12000 . It was written by one of our members who has two children with CD and its all about how we are not burdens to our loved ones, it might help you feel better about your situation. Remember that this isn't your fault, you can't help being sick. Me and my boyfriend are long distance too, and because of me being sick he almost always travels to me, which I've felt bad for in the past, but when I told him how I felt he said it was nothing for me to feel bad about, he loves me and he knows I can't help the situation, and that when I'm more stable I'll be able to make a bigger contribution, but right now, he's happy to do whatever is needed. It sounds like your guy is understanding and willing to help out, you didn't ask for this, none of us do, so don't blame yourself. Concentrate on getting a proper diagnosis and getting a good treatment plan for now, all the other stuff will fall into place later.
 

Latest posts

Back
Top