So I was diagnosed at 10 and am now 22. I have dealt with Crohn's my whole life. Surgery at 12 (removed about a foot) then again at 20 (removed another food after bowel obstructed and then perforated). The second time I was in the hospital for 23 days, lost 15 pounds, dropped out of college, cancelled my study abroad trip, etc. It is one of the defining moments of my life. My wound took 6 months and weekly trips to the Wound Care Center at Piedmont to heal. A year later I had an elective surgery to remove some of the scar tissue. It was so bad you could tell in clothes and I couldn't wear a bathing suit at all.
I ended up graduating from college on time and moved back home to Atlanta. I've been with the same wealth management firm since the day after graduation and love my job. I have been on Humira for over 5 years (since before the perforation which according to my doctor was just a freak occurance). I take good care of myself with sleep and am trying to eat better. I am SO sick of the pain and the lack of energy. I think my only option left since I've been on everything is Cimzia. It took me a month to even get an appt with my GI which is SO frustrating...my appt is next week and I don't know what to tell him. I haven't had to stay home from work or quit, but this definitely is impacting my life and my relationships at this point. I just don't know if it's worth it to try yet another med that could make things even worse or run me out of options.
Over the last 5 years or so, lack of energy is more of a complaint than the pain really ever was. Recently the pain has been getting worse even though I've restrained my eating.
I don't know what I'm asking for or looking for here--I am NOT a forum type person haha but I guess I just need people who understand and maybe are in the same type situation. I want to have a career and a life and not have to plan every minute around how I will feel. Is there anyone else young and new to the working world struggling with this stuff? I don't think there's really any advice that can be given in my situation except remaining positive. Anyone able to prove me wrong?
UGH! Crohn's sucks.
I ended up graduating from college on time and moved back home to Atlanta. I've been with the same wealth management firm since the day after graduation and love my job. I have been on Humira for over 5 years (since before the perforation which according to my doctor was just a freak occurance). I take good care of myself with sleep and am trying to eat better. I am SO sick of the pain and the lack of energy. I think my only option left since I've been on everything is Cimzia. It took me a month to even get an appt with my GI which is SO frustrating...my appt is next week and I don't know what to tell him. I haven't had to stay home from work or quit, but this definitely is impacting my life and my relationships at this point. I just don't know if it's worth it to try yet another med that could make things even worse or run me out of options.
Over the last 5 years or so, lack of energy is more of a complaint than the pain really ever was. Recently the pain has been getting worse even though I've restrained my eating.
I don't know what I'm asking for or looking for here--I am NOT a forum type person haha but I guess I just need people who understand and maybe are in the same type situation. I want to have a career and a life and not have to plan every minute around how I will feel. Is there anyone else young and new to the working world struggling with this stuff? I don't think there's really any advice that can be given in my situation except remaining positive. Anyone able to prove me wrong?
UGH! Crohn's sucks.
