ok so I posted this in treatment, going to repost here just in case its a better place to .
Help
Ok so I'm new, this is my first post. I am lost and need some advice. Last July I went to the ER with severe pain in my lower abdomen, it was so painful it felt like something was going to rupture. They ran some tests and did a CT and couldn't find anything. Gave me some pain medication and an antibiotic and sent me on my way. Soon after I began having very hard very formed BM that had white mucus on them. They were so hard that they caused me pain and bleeding. I set up an appointment with a GI doc who did a KUB dray and set up a colonoscopy after. He states he believed the pain was from severe constipation. The day or so before the scope, his nurse called and stated that I was 'backed up' and to go home and take a bottle of mag citrate. I did and of course it did its thing. A few days later I had my scope. Afterwards he told me that the scope showed inflammation in the lower. Intestine and anus area. He placed me on hydrcortisone Supp. They however did nit help. I was having D now and was losing weight. (Which keep in mind I have never had an issue before now and I was 23) I went back to him and did a small bowel series and sent out the promethias blood labs. The blood came back negative for IBD and the series was inconclusive stating that it didn't show anything and to follow up with a scope (that I already had done). So he put me on an 8 week course of budesonide 9mg everyday. Everything went away. I had no problems. I finished my 8 week course and the mucus came back with my bowel movements
, no blood ( I have never had bloody stools and have yet to have any), and no D. So I went to see him, he did another KUB xray and placed me back on budesonide 9mg everyday. All my labs are perfect, my xray was fine. He says that I am going to stay on budesonide, not as a flare up treatment but as a maintenance drug forever. So here I am taking 9mg of a steroids everyday, I only have one bowel movement a day ( formed but soft) and it still has the inflammation mucus on it. I only feel crampy like once a week and its not severe at all. I can eat anything without having increased pain or D ( except Mexican but who can ) . I am just confused. He knows of the continued mucus and doesn't seem interested. He States that my scope showed inflammation consistent with his visuilization of crohns , but the bowel series xray AND the blood work id negative. Has anyone had this problem? I don't want to be on lifetime steroids for something I don't have to be.
I'm just not sure if this is right it seems like my problem is more constipation and inflammation then any D and bloody stools. Is it still Crohns? or something else? Should I get a second opinion? or trust my doc?
Help
Ok so I'm new, this is my first post. I am lost and need some advice. Last July I went to the ER with severe pain in my lower abdomen, it was so painful it felt like something was going to rupture. They ran some tests and did a CT and couldn't find anything. Gave me some pain medication and an antibiotic and sent me on my way. Soon after I began having very hard very formed BM that had white mucus on them. They were so hard that they caused me pain and bleeding. I set up an appointment with a GI doc who did a KUB dray and set up a colonoscopy after. He states he believed the pain was from severe constipation. The day or so before the scope, his nurse called and stated that I was 'backed up' and to go home and take a bottle of mag citrate. I did and of course it did its thing. A few days later I had my scope. Afterwards he told me that the scope showed inflammation in the lower. Intestine and anus area. He placed me on hydrcortisone Supp. They however did nit help. I was having D now and was losing weight. (Which keep in mind I have never had an issue before now and I was 23) I went back to him and did a small bowel series and sent out the promethias blood labs. The blood came back negative for IBD and the series was inconclusive stating that it didn't show anything and to follow up with a scope (that I already had done). So he put me on an 8 week course of budesonide 9mg everyday. Everything went away. I had no problems. I finished my 8 week course and the mucus came back with my bowel movements
, no blood ( I have never had bloody stools and have yet to have any), and no D. So I went to see him, he did another KUB xray and placed me back on budesonide 9mg everyday. All my labs are perfect, my xray was fine. He says that I am going to stay on budesonide, not as a flare up treatment but as a maintenance drug forever. So here I am taking 9mg of a steroids everyday, I only have one bowel movement a day ( formed but soft) and it still has the inflammation mucus on it. I only feel crampy like once a week and its not severe at all. I can eat anything without having increased pain or D ( except Mexican but who can ) . I am just confused. He knows of the continued mucus and doesn't seem interested. He States that my scope showed inflammation consistent with his visuilization of crohns , but the bowel series xray AND the blood work id negative. Has anyone had this problem? I don't want to be on lifetime steroids for something I don't have to be.
I'm just not sure if this is right it seems like my problem is more constipation and inflammation then any D and bloody stools. Is it still Crohns? or something else? Should I get a second opinion? or trust my doc?