Newbie

[saul]

Hi,

I`m 66 yrs old from England. Diagnosed with Lupus in 1994. Am immuno-suppressed, and on long term prednisolone. Perotinisis in 1996 ( thought to be caused by steroids) resulted in a colostomy. Diagnosed with Emphysema in 2007.
For last 2 years been suffering with aggressive, corrosive liquid stools.
Am taking immodium as and when needed to try to slow down peristalsis.
Have recently had a number of CT scans and barium meals, colonoscopies and gastroscopies, and when I next see my consultant in June I understand he will say he thinks I have Crohns.
Not looking forward to that but at least someone will finally have put a name to what my problem is and this means I might be able to do something specific about it!

 

[xJillx]

Hi Saul and welcome! Did you get any results back from your testing or you get the results when you meet with your consultant?

As you said, there is a bitter sweet factor to getting a CD diagnosis. No one wants it, but at least you have answers and can address the problem. Let us know how it goes!

Hang in there!

 

[saul]

I see the consultant on 6th June.
I`ll let you know

 

[ameslouise]

Hi Saul and welcome!

Good luck on June 6th - D day. D for diahrea, and i hope they find something to help you with yours! If you do get a dx, like Jill says, it's bittersweet b/c you will have a new diagnosis to add to your long list, but hopefully it can lead to a treatment plan for you!

- Amy

 

[saul]

Thanks Amy.