Night sweats

[guest9933]

night sweats

does anyone experience really bad night sweats on remicade i had my first infusion like 3-4 weeks ago and some symptoms are creeping back guts is bad again and more trips to the loo i'm hoping to get another infusion this week

 

[PsychoJane]

I can't say if it is related or not to the remicade. I do have intense night sweats when I have good deal of inflammation going... Remicade can take times to work, 3-4 weeks is still early, maybe it is just the flare that is still acting up. I hope you get better soon.

 

[guest9933]

yeah hoping the second infusion will make it better

 

[moseslawn]

I've been having bad night sweats for about 3 weeks. going through an average of 3 t-shirts a night. I believe in my case this is caused by imuran.
After a visit with my gastro doctor on Dec 1, he decided to start weaning of prednasone, while at the same time doubling my imuran, and it's round about then that the night sweats started.
Anyhow, it looks like all of this is leading to infusions, as I have developed a tolerance to prednasone. I will be very happy to try something new. Cheers Moses

 

[Terriernut]

Moses, night sweats are one of my first indications of inflammation. (you sound like a man...so I'm certain it isnt your menopause!)

I too had the same thing coming off pred and taking 6MP. Until the drug really takes effect, which can take up to 6 weeks, you can have increased inflammation.

When are you having your blood work done?

 

[Grumbletum]

Yea, I had them too til I was started on meds so think they were a result of severe inflammation in my case too.

 

[moseslawn]

Hi Terriernut, Thanks for the reply. I had a colonoscopy yesterday, and on Jan 3rd I have some kind of TB blood test, of which I should have the results by Jan 6th. I guess if the results are good I should have my first infusion soon after.
I've only been diagnosed with Crohns/Colitus for about 3 years, but the past 6 months it has steadily gotten worse, and while prednasone was a miracle drug the first time around, it has been dimminishing returns ever since. As maintenance drugs, both Salofalk, and Pentasa were unsuccessful.
So, it looks like the next step will be Remicade, with Imuran as the maintenance drug.

Compared to what a lot of people on the forums have been through, my Crohns history is barely a footnote, but it's knocked me out of commission for the past two months. Looking forward to a better year in 2012. Cheers ML

 

[brianncc]

The night sweats are from the pred. Probably not Remicade. I am having bad night sweats too, talked with my doc and read on internet. He and from what I have found is it's the pred. I just got my second infusion today. All I can say is thank god for Remicade. I feel like I am in total remission. I was in the hospital for a 5 day stay six weeks ago, and a 6 day stay three weeks ago. Remicade got me back fast.

 

[guest9933]

yeah i'm still waiting for that second infusion

 

[Lisa]

why the wait for the 2nd infusion? You should be on a schedule for loading doses....

 

[guest9933]

yeah we have a thing called the pharmaceutical benefits scheme and they pay for the remicade I had to wait for them to issue the funding now i'm waiting on the hospital for an appointment for another infusion

 

[brianncc]

I would push them. It should be two weeks after you first infusion. Medical insurance sucks.

 

[guest9933]

its not insurance its government funded but you have to apply go for blood tests fill out forms then doctor has to approve it all then send it off to them then they have to approve it the application that is.

I rang the doctor the other day he said that its all been approved now waiting on hospital for an appointment for an infusion