- Joined
- Jul 28, 2014
- Messages
- 223
I figured this is the best group to ask.
Back story- my 6 yr old son has autism. He is not toilet trained as he has never been able to successfully recognize the urge to go and connect that to going to the toilet. Pedi referred us to urology to ensure there wasnt a physical problem being missed.
Urologist was quite annoying as her only real suggestions were the usual methods (promise him fun underpants, sticker reward chart, take him on a schedule) that I had already told her we had tried previously with no luck, but she did send him for an abdominal xray and bloodwork.
I was initially told bloodwork was normal and xray showed stool that needed to be cleaned out, and that he should take miralax daily until further notice. When I questioned why this would be and couldnt get a call back I called his regular pedi's office who promptly had a nurse call me. She agreed with me that before starting a daily laxative we might want to figure out the root cause especially since he has no known history of holding BMs in and infact has a daily soft but normal volume BM. We also noted that his IgA test was low, reference range on the report is 33-235 and his is 10.
She has handed this off to pedi and she is supposed to call me monday to discuss before we do anything else including the clean out and daily miralax.
However- my question is this. I asked a friend who is a nurse if she knew anything about IgA and she pointed out that IgA deficiency can be genetic and can be associated with allergies, asthma, and autoimmune disorders. She did mention having heard at some point that low IgA could be associated with IBD. Im wondering if any of your kiddos have had this test and if so was it low?
(we are naturally concerned given my crohns DX and the fact that my 9 yr old daughter and i are also both asthmatic though neither of us have ever specifically had IgA tested)
Back story- my 6 yr old son has autism. He is not toilet trained as he has never been able to successfully recognize the urge to go and connect that to going to the toilet. Pedi referred us to urology to ensure there wasnt a physical problem being missed.
Urologist was quite annoying as her only real suggestions were the usual methods (promise him fun underpants, sticker reward chart, take him on a schedule) that I had already told her we had tried previously with no luck, but she did send him for an abdominal xray and bloodwork.
I was initially told bloodwork was normal and xray showed stool that needed to be cleaned out, and that he should take miralax daily until further notice. When I questioned why this would be and couldnt get a call back I called his regular pedi's office who promptly had a nurse call me. She agreed with me that before starting a daily laxative we might want to figure out the root cause especially since he has no known history of holding BMs in and infact has a daily soft but normal volume BM. We also noted that his IgA test was low, reference range on the report is 33-235 and his is 10.
She has handed this off to pedi and she is supposed to call me monday to discuss before we do anything else including the clean out and daily miralax.
However- my question is this. I asked a friend who is a nurse if she knew anything about IgA and she pointed out that IgA deficiency can be genetic and can be associated with allergies, asthma, and autoimmune disorders. She did mention having heard at some point that low IgA could be associated with IBD. Im wondering if any of your kiddos have had this test and if so was it low?
(we are naturally concerned given my crohns DX and the fact that my 9 yr old daughter and i are also both asthmatic though neither of us have ever specifically had IgA tested)
