Non compliance with medication

[outlier]

non compliance with medication

I am full of questions today...

In dec/jan i was RX MTX I took it for maybe 2 months and then stopped. I decided it was giving me headaches, since blaming the humira seemed not useful, so i blamed it and stopped. It was also the med that put me over the edge of too many.

I know stopping it with out telling any one and lieing about taking it was bad. I worked on telling the doc but only recently found the courage to ask her to stop it and not that i was non compliant with it.

So now i am having stomach issues and I know there going to be like oh well you just stopped the MTX maybe that the issue when the truth is i stopped a long time ago. also they are never going to believe me that i am am really compliant about everything else.

so if you have ever admitted to a doc about non compliance? How did they take it?

 

[Del]

First of..its a good question. I am recently diagnosed with CD so i have not attempted to stop any meds. they have just helped me to much.
However...would I stop if I thought one was causing me problems?
I would not..until I informed the Doc first.

My own consultant spelled it out to me from the start....he needs me to be honest with him, so he can best help me. Most Doctor/patients relationship are built on honesty.
I would not like to comprise that for my healths sake.
Take care...

 

[outlier]

that is the logical way of thinking and acting. this started as a big of a temper tanturem and a way of acting out that i allow to go on way to long.

 

[Gwen pippy]

yep I have to admit to it, I did it, stopped meds, didn't admit to it, got caught out, had flares, didn't agree with other meds and the side effects i suffered, that was when I was a lot younger, a teenager and it was expected and anticipated by my doc's, they started to explain my condition and the meds used and I started to have major successes. My advice - Get as much info as possible, keep good communication with your doc/GI. Don't be afraid to try new meds and report any issues and DON"T stop any meds without consulting your doc first and arranging a suitable alternative. Meds can be a pain in the butt sometimes but not taking meds for some can be a world of pain and an uncertain future.
Good luck and hope your stomach issues are resolved soon.
Gwen

 

[DustyKat]

I guess my main concern about not being open with your doctor is they may well say to you...if you aren't going to work with me I am not going to work with you and may lose a very good doctor.

I have never been in this situation myself but I do work with doctors and have certainly seen this situation before. It depends entirely on your doc, some shrug it off and are happy to start at square one again, others take offence to it and refuse to treat that patient unless it is an emergency.

Good luck and keep us posted!

Dusty. xxx

 

[outlier]

so continue ignore the subject is my best option, and just refusing to go back on it. That's what I get for acting stupid.

 

[DustyKat]

Nobody's perfect mate. If I were you I would speak with the doc and lay it all out in the open. Be honest, forthright and speak from the heart, talk about how you feel the treatments have or haven't worked for you and based on that why you haven't continued with some of them. Most of all admit if you have made a mistake and tell him/her that you have learn't from that and in future you will not make these sort of decisions without speaking with them first.

My own personal opinion is...if a doctor isn't willing to listen to you, understand that nobody is perfect, admit that dealing with chronic disease is difficult and forgive you your mistakes then perhaps they are not the doctor for you...they wouldn't be the doctor for me. :wink:

Dusty. xxx

 

[sunflower]

DustyKat has a good point. Even if you hid the truth from the doctor for a while, you should be able to admit that you made a mistake. If not, then you may have to find a new doctor. I saw a doc for 10 years and we didn't agree all the time, and sometimes even argued about what we should do. But, it wasn't a bad relationship, because we could agree to disagree and we went on with things. Come clean and deal with the consequences. (What is the worst that will happen? A lecutre?) It is what you would do in any relationship that you value. It will be okay. You will do better the next time, right?

 

[Emily]

Hey. My best advice would be to just be totally honest about it, cause if you allow them to believe that you stopped the mtx just recently, they will not be able to properly hypothesize what's going on with your current stomach issues and it is pretty important that they treat that. Just be honest (I know it's embarrassing and not fun, I put myself in situations like this all the time ) but promise your doc that it was just one stupid mistake that you won't make again. We all do stuff like this! The most important part of this situation is to get your stomach treated for whats going on.
Good Luck!!:hug:

 

[archie]

Honesty is the best policy especially with regards to the types of meds your on, non compliance is Hugh in the health system your not the first and def not the last to do it but own up now as the only one that will suffer will be you.

 

[braveheart]

I am not encouraging anybody to do this since I know it is wrong but, I stopped meds some times when I found they make things worse. I am talking about new treatments I've tried without sucess. The times I did that I gave a second chance to that new treatment to make it sure that was causing things worse.

I haven't done that at first, but after years and years of Crohn I fell in the position of take some risk. I know better than anybody how the treatments are going, after 25 years of Crohn I don't need any x-ray to see if it is working or not.

Then I tell the doctor the truth, he annoys a little bit, but he understand. Doctors are professionals, they are ready to hear anything from you.

I also ask my doc about treatments I found here in the forum or on the Internet and we allways lisent to me. I remember he prescribed one of these treatments once. He is a wise professional I think.

 

[ekay03]

When I was on pentasa and I was to take 16 large pills a day. I was honest and said this is too many pills!! The doc put me on 3 little pills of Azothiaprine a day. Since I was able to take 3 little pills I was completely compliant and as a result I felt much better. The moral to the story is not telling the doc the truth only hurts you in the end. Be honest w/ your doc. Another thing is you don't want them labeling you as non-compliment. That is never good.

 

[outlier]

Part of what allowed this to go on so far is MTX in theory just keeps humira anti-bodies away and had minimal effects on how i felt or so i was told. i think if i new it would have had an effect i would have been less silly.

 

[new2crohnsMH]

I've been down this road and to kind of second what everyone else is saying, be honest. If you tell the doc you've been taking it and then they quietly do a blood test to check, and your levels come back at 0, then not only are you caught but you look like you're lying, and most people don't handle that well.

This recently happened to me. The doctor had been doing some blood tests and approached me about my med levels. I decided to tell my doctor that I just couldn't stand the meds I was on because I didn't feel right on them, and as a result I had quit taking them (which he already knew). He got PISSED. He basically said if I was not going to do what he said, then he was going to write me off. And that was it. I told him I was going to try to be better with it, but after I was and told him I was he has yet to ever call me back. So, I ended up going back to a doctor I had previously, and in hindsight I never should have left. He had actually been the original prescriber of the meds and my local doc took over, which was the one that got mad. I told this doc what happened, that I was extremely sorry and very much in need of his help, and would he give me a second chance. Fortunately, he did, and he was nice enough to recommend switching me to something else (hopefully this week, waiting on insurance).

Being honest up front here, and not waiting, probably would have saved me some hassle because then I wouldn't have had to deal with going back to another doctor and going through all of the tests again, but that's life so I guess live and learn on my part.

Just my opinion on experience on this subject.

 

[outlier]

i saw the doc this week. I didn't quite tell him. I just said when he asked how long since i last took MTX i said half a year. he said i thought it was just 3 months. i said it's been longer then that in reality. But didn't say anything else on the subject. He seems to get my personality and that i sometimes act impuslively but not out of bad intent.
so it all worked out thank you for the advice.
now if only my stomach would behave