Noob

[skikdi]

Hey all

My names Maher, and Im from Canada. Erm in April this year I thought I had food poisoning because I had a crampy stomach and I was throwing up. I ignored it for a while, then it came back. So I decided to get it checked out.

Doctor thinks I have Crohns and Im pretty sure I have it too. I dont suffer from most of the symptoms though (bloody diarrhea, loss of appetite etc.) just the two aforementioned.

I get confirmation this Friday. :thumleft:


Im new to the forum, but I figured that I needed to know what exactly was wrong with me and most of the time you people are way more helpful than my Gastroenterologist.


As for me, the person...Like I said Im from southern Canada, Im a student currently studying Philosophy. I think Im obsessed with soccer. I also like to read though. Uhh yeah. Dont feel like talking about myself any longer.

If you have questions please feel free to ask. Looking forward to being a part of this community.

See ya around

Edit Oh yeah. I was on 40mg of Prednisone but Ive tapered all the way down and now Im not taking it anymore. On 3000mg of Pentasa though. And it is NOT working

 

[crazycanuck]

Hey there welcome to the forums. Symptoms can be a tricky one as they are always different from each person on here. There are many people with Crohn's without diarhhea. Best of luck finding some answers for you and grats on weining off that Pred. I hear it can be some nasty stuff.

 

[skikdi]

Cheers for the welcome, and yeah Prednisone gave me some nasty acne all over the place...sexy huh?

 

[Nancy Lee]

Hello Maher and welcome to the forum!!
Let's hope you get an answer one way or the other on Friday!
Hope to see more of you around the forum!

All the best~Nancy

 

[skikdi]

Woow

OKKk Now Im a bit confused. My Dr was a bit better today. I had an appointment and he confirmed I had Crohns!

I got off Pentasa, and he put me on Imuran. Is that a good or bad move? Ive been OK for the last few days on Pentasa. And Im thinking in the long-term. Would Imuran effect my body worse than Pentasa in the long run?

He also told me theres a chance of Pancreatitis and low blood cell counts. So Im reluctant to start Imuran.

He was all for me travelling though! Said I just had to let him know and hed prescribe some Prednisone for me. So thats great.

mmmmmMMMMmmmm I think thats all.

Any input on Imuran would be super helpful.

 

[DustyKat]

Hey skikdi,

When commencing Imuran you need to have frequent blood tests for those very reasons. They generally start out weekly for about 4 weeks, then fortnightly for a couple of months, then monthly for about six months, then every 2 months for a further 6 months, then 3 monthly. These were my kids regime but every GI will have different regimes.

Did you have a TPMT test done? It will tell you if you have sufficient quantities of a particular enzyme that helps metabolise Imuran. Generally the level of enzyme you have is indicative of your chances of suffering the more severe side effects. That is, the lower you go the higher the risk.

My daughter has been on Imuran for 5 years with no issues and my son has been on it for 7 months with no problems.

If you haven't already done so check out the Imuran Club.

Good luck!
Dusty. xxx

 

[AndiGirl]

Hi Maher and welcome to the forum. You're in good company here, there are plenty of Crohnies.