Not Diagnosed Yet But Suspect I Have It

[mamabear]

I've had tummy trouble for quite some time and I've been working with my family doc. He put me on 2 meds for IBS and when he went to try the third one said if this doesn't work we'll send you to a GI doc. She did some blood work and 2 days later I was in the ER with terrible lower left abdominal pain. During my hospital stay (which lasted 6 days) I got a call from GI's office saying that based on the blood work I have celiac disease. While in the hospital GI did an endoscopy that confirmed the celiac. She tried a colonoscopy but was unsuccessful due to inflammation. Since then, we tried another colonoscopy but couldn't finish for the same reason. I've also been in the ER several times with the same lower left abdominal pain. During the original hospital stay they said it was diverticulitis. After the second failed colonoscopy GI sent me to a surgeon. He said based on the 2 CT scans there was no clear indication of diverticulosis pockets and that he'd discuss it with GI. They have determined that I should have a barium enema.

I talked to my mom today and she was asking how I felt and I sad still bad (I was just in the ER again this past Wed). She asked exactly what was wrong and I told her about the lower left pain and stuff and she said it sounded like it may be Crohn's. I posted on Facebook what she said and I had a few friends who have it or have family with it and they all said that they didn't know I hadn't been tested for it and that they'd have suggested it months ago if they knew I hadn't been tested.

I have my barium enema Tuesday morning so I'm going to bring it up to the docs. I just wanted to come here and get info and maybe get some advice and/or suggestions from you all. Thanks for listening!

 

[David]

Hi there and welcome

Have you begun a gluten free diet to deal with the Celiac Disease yet? I'm curious why they think it may be something in addition to the Celiac Disease? Or are they just being thorough?

I wish you all the best! Keep us updated!

 

[Crohn's 35]

:welcome: to the forum! It isn't unheard of but you can have celiac and crohns or another IBD. When it is inflammed and they cant get thru, could be a stricture there. A barium follow through will show narrowing and polyps if there are any. Too bad they can't get a biopsy when they tried the scope. Let us know how your tests go. BTW make sure you drink alot of water and or hot tea to wash out the barium... lots of people here to help you. :hang:

 

[Del]

Hello and welcome to you.
I hope all goes well for you on Tuesday and that it is good news.
We all live with hope as well as medication.
Take care.

 

[mamabear]

Hi there and welcome

Have you begun a gluten free diet to deal with the Celiac Disease yet? I'm curious why they think it may be something in addition to the Celiac Disease? Or are they just being thorough?

I wish you all the best! Keep us updated!

I have been gluten free since June (other than the occasional accidental glutening). I still have problems with my stomach and since the celiac diagnosis have been in the ER about 7-8 times.

:welcome: to the forum! It isn't unheard of but you can have celiac and crohns or another IBD. When it is inflammed and they cant get thru, could be a stricture there. A barium follow through will show narrowing and polyps if there are any. Too bad they can't get a biopsy when they tried the scope. Let us know how your tests go. BTW make sure you drink alot of water and or hot tea to wash out the barium... lots of people here to help you. :hang:

I believe I was told I had strictures and narrowing of the colon. They did a biopsy of the small intestine on the endoscopy. Thanks for the heads up on flushing the barium.

 

[David]

I have been gluten free since June (other than the occasional accidental glutening). I still have problems with my stomach and since the celiac diagnosis have been in the ER about 7-8 times.

Bummer, I'm so sorry to hear that I hope they get to the bottom of things soon! We're here for you in the meantime.

*hugs*

 

[Mudstick]

I feel for you. I have been having the tummy pains off and on for yrs. The first colonoscopy showed there was inflammation but was inconclusive. I am having my second colonoscopy on the 26th. I just want a diagnosis so that it can be treated. This flare up have been going on now for a month. I just want some relief. Please keep us posted on how you are doing.

 

[mamabear]

Haven't had much going on other than the BA which was "normal." I just had some blood work done today to find out about Crohn's. This was the soonest I could get into my GI doc. I am also having a sigmoidoscopy and she'll be doing biopsies. If that doesn't answer anything for us then she's sending me up to U of M to see if they can find anything. I just want to know what's wrong, ya know? :angry-banghead: