I'm so angry right now I'm fighting back tears. First of all, no one has even looked at my daughter's lab results from last week. Both the Rheumo and GI nurse are arguing about who ordered the labs and both say they can't find them in the system.
And then I get the pathology report from her leg biopsy which reads: RIGHT THIGH SKIN AND SUBCUTANEOUS TISSUE, BIOPSY:
Mildly edematous skin and subcutaneous tissue with recent hemorrhage
and mild superficial dermal infiltrate of mononuclear cells with rare
neutrophils and eosinophils (see note).
NOTE: The primary histological findings in this biopsy include a
subtle superficial perivascular dermal infiltrate that includes rare
granulocytes, as well as mild dermal edema in association with
evidence of recent hemorrhage in the subcutaneous tissue. These
findings have many similarities with the patient's previous skin
biopsy (see pathology report NS13-945), although the findings in the
present biopsy are significantly less impressive than in the previous.
The histological findings described above are not definitively
diagnostic for a vasculitis, panniculitis, or a mass lesion.
Nevertheless, the constellation of findings are somewhat suggestive of
urticaria or hypersensitivity reaction, and in conjuction with the
clinical history and findings, raise the possibility of an urticarial
vasculitis or a related disease. Of note, urticarial vasculitis may
precede the development of a variety of systemic disorders, including
-but not limited to- PAN and inflammatory bowel disease, both of which
have been questioned clinically.
So she's been cut open twice and they still don't know what these lumps are all over her body! This is why I was hesitant to do a second biopsy in the first place!! Her lesions look nothing like hives so I don't buy the "urticarial vasculitis" crap. I'm so fed up with doctors not being able to tell me what's wrong with my child!!!
