Painful Red Patches

[Aphrodite_x]

Hi all,

Can someone give me a bit of advice?

For the past few weeks, my body has been aching. More specifically, my ankles, feet, knees, back, hands and wrists. Its gotten to the point now where I'm struggling to drive because of using the handbrake and gearstick, and the only shoes I can get on my feet are ugg boots.

I thought I was losing my mind! Thought maybe I just needed to exercise a bit, stretch my muscles more etc.

But I've woken up this morning and, where my legs and feet have been sore, there is hot red patches, lumps about the size of a 50p. They're painful constantly still, even more so when I touch them, but its not a surface pain. More like a muscular pain. None of these patches on my hands or anything yet, all below the knee.

Is this another lovely EIM coming from CD, or should I go to GP to get it checked? I've also had a horrible horrible cough for about 6 weeks, and this morning also I couldnt open my left eye because of all the gunk in it, and its all bloodshot could it be related?

Thank you for any advice? Think this flare is never ending 8 months and counting.

 

[Axelfl3333]

Is it possible you,ve got shingles?I,ve had it it's painfully causes joint pain and a rash that's raised and it's not connected to crohns,it's viral but if your cd is playing up you,ll be more prone to catching stuff.good luck

 

[Axelfl3333]

Ps go to your gp

 

[Aphrodite_x]

Thanks Alex, got an appointment at 5.20 tonight so I'll see what they say.

 

[WindowSeat]

Hi all,

Can someone give me a bit of advice?

For the past few weeks, my body has been aching. More specifically, my ankles, feet, knees, back, hands and wrists. Its gotten to the point now where I'm struggling to drive because of using the handbrake and gearstick, and the only shoes I can get on my feet are ugg boots.

I thought I was losing my mind! Thought maybe I just needed to exercise a bit, stretch my muscles more etc.

But I've woken up this morning and, where my legs and feet have been sore, there is hot red patches, lumps about the size of a 50p. They're painful constantly still, even more so when I touch them, but its not a surface pain. More like a muscular pain. None of these patches on my hands or anything yet, all below the knee.

Is this another lovely EIM coming from CD, or should I go to GP to get it checked? I've also had a horrible horrible cough for about 6 weeks, and this morning also I couldnt open my left eye because of all the gunk in it, and its all bloodshot could it be related?

Thank you for any advice? Think this flare is never ending 8 months and counting.

Aphrodite,

That sounds like Erythema nodosum, which can definitely be related to CD. I agree that you should have it checked out - especially since it's so painful.

Best of luck!

 

[Aphrodite_x]

Aphrodite,

That sounds like Erythema nodosum, which can definitely be related to CD. I agree that you should have it checked out - especially since it's so painful.

Best of luck!

Hi WindowSeat,

I googled Erythema nodosum - it definately sounds like this is it. I'll mention it to my GP later.

Thank you

 

[Aphrodite_x]

Aphrodite,

That sounds like Erythema nodosum, which can definitely be related to CD. I agree that you should have it checked out - especially since it's so painful.

Best of luck!

You were right WindowSeat, this is what it is.

I went to GP on Monday, but by the time I got there the patches had disappeared. The doc said keep an eye on it and come back, so I did. It got really bad last night so I took pics, and showed them to the nurse this morning at my pre-assessment and she said it looked like lupus and go back to GP asap.

I called the GP and told them this and got another appointment. Showed them the pics and my legs, and the fact I can barely walk, and the doc said right away 'erythema nodosum'.

Cue referral to rheumatologist (sp). Nothing else. Doc told me I really have to change my meds and come off azathioprine.

Guys can I come off aza while I'm waiting on my scope etc?? I dont know how much more of the aza side effects I can take. I now have acne, joint pain, migraines, I'm getting infections everywhere because of my immune system, and I'm just exhausted. Its not even helping my CD seeing as I'm still in pain all day and up about 5 times a night.

I'm between GI teams right now so I dont know who to go to my old one just kept saying 'aw give it time it will work, it will work!' 7 months later.....no it wont

 

[Lisa]

Whenever I developed ED, my doctor put me on prednisone, usually a short/fast taper - that always did the trick. The ED was also a sign that things were not under control.....

Yes, VERY painful - mine would affect from my knees down and I'd get these awful bruises when it was clearing up.....

 

[Aphrodite_x]

Ooh I have some pred leftover in my cupboard for emergencies. I might take a quick 2 or 3 weeker