Pantoloc ??

[fromthegut]

Hi friends,

I am trying to get back to a new normal after a recent hospital stay. I had a life threateneing blood clot. Boy was it painful !!! and it was very scary.
Durign ym stay the Doctor changed my acid reflux medication to Pantoloc. Boy has that made a huge difference. I seemed to constanyl have stomach pain.
I have tried for years to do alterntive methods and it was very hard work. Medication is much easier.
I do however feel liek a failure. Why is it I feel like failure for taking medication ?
I will tell you taht prayer helps greatly. I am trying to remain calm and not watch thigns that are downers. I some tiems feel like I go backwards. I also got support from people and palces I didn't expect.

 

[InkyStinky]

Hi there! Boy, I'm glad you're ok - clots are really scary things. Do the docs know what caused yours? I was dx'd with dvt & bilateral pe back in '09, and the docs still are confident saying what caused it (thought I'm pretty sure they were linked to my crohn's flare). Are you on warfarin? Lovenox (those dang injections!)?

I'm not familiar with that reflux med, but please don't feel like a failure for having to take it, or any other meds, for that matter! Having IBD is not your fault, and while I've heard of people who can maintain med-free remissions (I had one myself a few years back), this disease is unpredictable and needing meds is not a sign of weakness. Being on the right meds to control your disease and symptoms gives you time to focus on other things in life other than feeling like crap!

Anyway, not sure if I'm at all coherent at this point --- the prednisone I'm on has really started to mess with my head! But I hope I was able to encourage you - even a little!

 

[InkyStinky]

Ok, I just saw in another thread that the docs were thinking birth-control pills contributed to your clot. I was on the pill before my clots, too, but I was also flaring, and after being dx'd with clots I found out that there is a lot of research linking clots to flares. There are a few threads on this forum about that - here's one: http://www.crohnsforum.com/showthread.php?t=16325&highlight=clots

It'd be worthwhile to talk to your docs about this, if they don't already know about the link.