Pred Panic Heeeelp

[mRae85]

Aight, so the more I read on here and all over online the more I am glad I do not have any high blood preasure problems or I would have had a heart attack by now! I am on 40mgs daily and last time at the Dr's , I was told we might up it AND this is something that I will be on for a long time to come (from what he was talkin about the rest of my life) now I already found out the hard way what happens when you go from 40mg to 0 over night but I have been reading more and more of 20 and 5 being hard to get off of! Up till now I was just worried about being a pain pill addict but now I am more worried about the Pred!! AND is this stuff really safe at all?AND AND AND AND!!!:yfaint:

i go to the Dr on Monday AND I am really in need of advice before I go, the Pred has helpped when it comes to D, but when I am still in so much pain and just have an over all "sick" feeling I dont see the point in staying on it (other than to taper apparently) Also, everytime i get up or even move.. or dont move like right now, I get really dizzy.. that has been a big issue for a while now. 90% of the time when I stand up, i seriously have to have something to hold on to for a few min's jus to get my breathing under control and the "entire world moving" feeling to get under control. Is this the Pred or is it another symptom of Crohn's telling me that the Pred is just not working. I have always had a problem with this "world is moving" but it is just alot more frequent now. Even just sitting here I have a slight "unbalanced" feeling, this is really getting me scared. A year ago they told me that crohn's was completley managable... well... THEY LIED!!!!!

also just wanted to say.... IF THIS PAIN IN MY RIGHT SIDE DOESN'T EASE UP I AM GOING TO CUT THE DAMN THING OUT MYSELF :ymad:

 

[mRae85]

Im scared The last Dr... the one who got too busey for me basically told me Id be on it for ever and this new one seems to have the same plan. I know when I go in on Monday due to all the pain I am still haveing he is going to probably raise it... and that has me more scared, the more I know about this pill the more I dont like it!

 

[katiesue1506]

If you are anemic, the dizzyness could be from that, not the Pred.

 

[Guest]

i don't know if this is going to help you at all.. but i've had dizziness and faint feelings for ages, on and off, before, during and after pred treatment, so for me, i know it wasn't caused by the pred.

sometimes taking a rehydration drink helped, sometimes eating something with sugar in did, but many times i never know the cause nor how to make it go away. it's horrid, and i sympathize with anyone who has this.

oh and also, have you had your vitamin B12 levels checked?

 

[Kittee]

I also get those dizzy spells you are describing. Feels like the floor is moving for a brief second or two. I normally get those a few times a day. On or off pred, but it started when my Crohns kicked into high gear last year. Pred makes it worse.

I think it has to do with the inflammation in my body or something. My DR. has assured me that it's ok though.

And don't feel bad about panic attacks. I had one today. I've only been off pred now though for a few days, so I think my body is just getting used to being without the drug again. Generally I feel quite "crappy."

*hugs*

 

[mRae85]

I dont think I am anemic as of now, but the Dr warned me about it and my B12 levels, I take B12 everyday with all my other vit's. Glad to know I am not the only one around here who seriously has the world moving all the time though or going to the verge of fainting, I was begining to wonder if it wasn't the pred then maybe something serious going on with my brain! Maybe that is just another one of those Crohns symptoms that effects one person and not another. I know for sure it has got worse since being on the pred though, so maybe I will get some answers from the Dr tomorrow... we shall see

 

[mRae85]

well, i began taper today... long thread on everything about today is somewhere... kindda balling like a baby at the moment. I am on B12, calcium, Vit c, multi, vit D, and... seriously I take well over 15 vit's a day, my mom passed that and herbs on to me, she has always been big into and Im lucky to have that knowlage I guess. Dr told me today he wanted to taper (well i mentioned it about the same time he did so it was a mutual agreement I guess) At the moment I am dumbfounded by everything, just had to let you know how my pred issue is... I am on 30mg a day now, not sure when next taper will be yet, guess it depends what happens with this one. Sad to say but I think it did alot more bad than good, as I stated in my today thread, I now have blood and mucus and... I seriosuly need to stop crying at the moment... sorry if there are many typos, I dont care right now :depressed:

also, thought id add, I am going to talk about B12 and anemia checks next time I know Im due for more lovely vials of blood to be taken... I swear those Drs are all related to Dracula somehow (no offence to you who have med degrees :tongue: )