Well, after 5 pretty darn good years with Remicade - that chapter in my life seems to be coming to a close and I'm fairly upset about it. I have been having more and more problems and even with them increasing my dose of Remicade last week - it appears that I'm beginning to flare for the first time in 5 years. So, after discussions between my GI nurse and doctor today, I think I'm going to do a round of prednisone (boo!!). I asked for a short taper - and I think for the first time in my history - she is going to let me try it (yay!). She said if it doesn't work and the Remicade higher dose doesn't kick in - it is scope time (boo!) and probably medication change time.
All this makes me realize how you take for granted when you are feeling good - because when you start feeling bad - it usually is really bad and all those feelings associated with feeling bad (pain, nausea, the big D, will I crap myself in public, will the next medication work, what if nothing works) come right back to the surface for me, and I hate being in that place (who doesn't?).
Well - I guess I can look forward to more energy which I have been lacking as of late. Hopefully I won't have to join the insomnia club LOL!
All this makes me realize how you take for granted when you are feeling good - because when you start feeling bad - it usually is really bad and all those feelings associated with feeling bad (pain, nausea, the big D, will I crap myself in public, will the next medication work, what if nothing works) come right back to the surface for me, and I hate being in that place (who doesn't?).
Well - I guess I can look forward to more energy which I have been lacking as of late. Hopefully I won't have to join the insomnia club LOL!
