Hi all. Just joined this forum today and wanted to share my story - the short version.
Diagnosed with Crohn's when I was 13 (I'm 37 now). Tried the full gamut of medications. Many worked for a time, but then I had to try something new. Had surgery when I was 18 to take out a small part of my small bowel. Disease came back two years later. Went on 6MP, Entocort, Questran powder mix, etc. Had partial help with it for awhile, then need to go on Remicade. Remicade was amazing for 7 full years. Then I had some skin irritation eczema and wondered if the Remicade was causing it.
So I pulled back on Remicade to once every 4-6 months. Turns out the skin thing was not Remicade-caused. But by the time I figured that out, I was kind of off Remicade and doing super well. I added the use of probiotics, Vitamin D, enzymes, and eating better foods. Stayed on the 6MP and Questran, but that's it.
Now it has been 3 years off Remicade and I'm doing great! Not sure if it's the probiotics or not, but at this point I credit them with my health.
My aunt has colitis and years ago was told by a doctor to have a colostomy when nothing else would work. Her son's pediatrician told her to try probiotics. She took them for two months and BAM - completely symptom free. She's been symptom free for 13+ years now, ONLY on probiotics. Amazing. So, I figured we have similar genes, so maybe I'd try it too. And it has worked great for me. Also, no more skin issues at all. I'll still have some minor cramping now and then, but it's very light compared to what I used to have. I'd even say I'm doing better now than when I was on Remicade! Hard to believe, I know.
Maybe there's another reason I'm doing so well. All I know is that I've been on a really low dose of 6MP for three years and that's it (something that wasn't working for me pre-remicade). So, I don't know how else to explain it. Doctors don't either. Just taking it a day at a time.
I take Garden of Life Probiotics with HSO's. 4/day.
Also, Garden of Life Omegazymes with every meal.
I also take turmeric every day, and Vitamin D.
Sometimes fish oil.
My wife helps me to eat much better now too. Lots of butter, fatty foods, organic meats and dairy, etc.
Anyway, I'm curious if anyone else has had success with probiotics. I'd love to hear your story.
Diagnosed with Crohn's when I was 13 (I'm 37 now). Tried the full gamut of medications. Many worked for a time, but then I had to try something new. Had surgery when I was 18 to take out a small part of my small bowel. Disease came back two years later. Went on 6MP, Entocort, Questran powder mix, etc. Had partial help with it for awhile, then need to go on Remicade. Remicade was amazing for 7 full years. Then I had some skin irritation eczema and wondered if the Remicade was causing it.
So I pulled back on Remicade to once every 4-6 months. Turns out the skin thing was not Remicade-caused. But by the time I figured that out, I was kind of off Remicade and doing super well. I added the use of probiotics, Vitamin D, enzymes, and eating better foods. Stayed on the 6MP and Questran, but that's it.
Now it has been 3 years off Remicade and I'm doing great! Not sure if it's the probiotics or not, but at this point I credit them with my health.
My aunt has colitis and years ago was told by a doctor to have a colostomy when nothing else would work. Her son's pediatrician told her to try probiotics. She took them for two months and BAM - completely symptom free. She's been symptom free for 13+ years now, ONLY on probiotics. Amazing. So, I figured we have similar genes, so maybe I'd try it too. And it has worked great for me. Also, no more skin issues at all. I'll still have some minor cramping now and then, but it's very light compared to what I used to have. I'd even say I'm doing better now than when I was on Remicade! Hard to believe, I know.
Maybe there's another reason I'm doing so well. All I know is that I've been on a really low dose of 6MP for three years and that's it (something that wasn't working for me pre-remicade). So, I don't know how else to explain it. Doctors don't either. Just taking it a day at a time.
I take Garden of Life Probiotics with HSO's. 4/day.
Also, Garden of Life Omegazymes with every meal.
I also take turmeric every day, and Vitamin D.
Sometimes fish oil.
My wife helps me to eat much better now too. Lots of butter, fatty foods, organic meats and dairy, etc.
Anyway, I'm curious if anyone else has had success with probiotics. I'd love to hear your story.
