Problem after rectum removal

[San_30]

Hi im new to this forum, ive had my colon rectum and back passage taken out in 2010, about 1 yr after a hole appered in my bum where the surgeon had sewn it up ( sinus wound) since then ive had numerous little ops to try and fix it but nothing has worked so i have a district nurse coming every day to pack this wound as it constantly leaks green gunk, sometimes theres no pain other times i have a lot, this has been going on for two years now and i am so fed up. Lasr week my colorectal surgeon referred me to a plastic surgeon to see if he an re construct the area, he said he would have to take a muscle from my thigh and fill in the wound (gracilis muscle flap) i really dont want this op after everythingbive been through so the only other option ive got is to come to terms with the fact ive got this non healing leacking wound forever.

Ive not stopped crying this past week, i dont know how im going to cope with it and it scares he life out of me

 

[afidz]

Hello,
I can imagine how frustrated you are, the need for more surgeries is an awful thing to deal with. But you have to think long term. If you don't get it corrected now there could be more severe complications later. At least go to the consultation with the plastic surgeon. See what they say, it might be a very simple procedure and in the long run you will feel better

 

[annawato]

San I'm so sorry you are having these problems and can completely understand how fed up with it all you are. As Afidz says it will be better in the longterm if you get something done even though that is the last thing you want. Also I was just reading on another thread about a non healing anal wound and pain and someone suggested that a wound culture is done so the correct antibiotic can be prescribed. has this been done for you?
Here is a link to the thread as it is a very similar problem to yours:
http://www.crohnsforum.com/showthread.php?t=55133
Whilst another op is a horrible thing to consider life will be so much better without a continually draining wound. It will be a week of pain for a lifetime of feeling good about yourself. Hang in there. My thoughts are with you.

 

[San_30]

Thank you so much for your replys, i really appreciate it, im having to go for an Mri scan and an examination of the area while im alseep so the plastic surgeon can have a proper look an decide what method of operation is best, this past week the pain has come back and its now infection again, each time they take a swab and put me on a course of metronidazole, this happens about on a month.

I deal with the crohns, ilesotomy and everything else quite well and im always positive but recently its all become a bit too much and thats why i thought id come on here to speak to other people who go through similar things. I feel so alone and i dont feel i have anyone to talk to or who understands even though i have an amazing family and boyfriend i sometimes feel a burden and dont like to worry them

My stoma nurse has referred me for some counselling to see if that helps, im really hoping so.

Thanks for the link, ill have a look

 

[afidz]

Counseling is a great idea, I think at one point or another we all need it. This is a hard disease to live with and when we suffer from complications it makes it that much harder.
I know how you feel when you say you feel like a burden. Again, I think we all get to that point. The best thing I did was talk to my family about my feelings, it was a great way to open lines of communication.