Professional patient status

[VintageAnn]

I have made a decision that I have been seen by enough doctors, been misdiagnosed, under diagnosed, over diagnosed and diagnosed just right. I have been poked, prodded, cultured, palpated, squished , scraped, and biopsied. I have seen pictures of my internal organs whether I liked it or not. I have had enough procedures, surgeries and peed in enough cups, had my blood drawn to the point of feeling like I needed a transfusion and had my "stuff" looked at by enough pathologists.

I have been ultrasound and echoed, I have been ekg'd and ercp'd I've been scoped in every conceivable place a scope can go. And I know anything that ends in "opy" I am not going to like. I have been under medicated, over medicated and everything in between. I have obtained a medical degree by watching discovery health. I have taken enough prednisone that it was hard to tell whether I was human or a helium balloon. I have swallowed enough pills in cluding one in a lead container carried by a guy in a lead apron.

I am now injecting myself in the stomach every other week with some kind of
medication that I have no idea what's in it. The last stuff had mouse protien in
it that I was allergic to so I decided not to ask this time.

And what has this gotten me? I believe I deserve to be paid for being a patient. I have spent enough time waiting and allowing medical doctors to "practice" their chosen field.

They should be paying me! ALOT of money. I have crohn's disease and fibromyalgia. Two conditions that require ALOT of practice. I should get a time
card and get it punchedevery time I go. Much like you get a ticket validated at the mall for parking. Once a month I send in my timecard and get a nice check in the mail a few days later

This is my idea of health care reform. I can't get disability so might as well get paid!

 

[DustyKat]

Hi VintageAnn and :welcome:

Good to see you here! Well after all that I reckon you should be paid too!!! Maybe if you all got paid it would make some of the docs out there take their patients a little or should I say a lot more seriously, you might be onto something there!

You have certainly been through a lot so I hope you stick around and share your experiences and knowledge with us, you will be a very welcome addition. This really is a safe, friendly and supportive place to hang out.

Welcome aboard!

All the best,
Dusty

PS. Would you like to post your story in the Your Story Forum?

 

[Jennifer]

Yes please post in the Your Story Forum so you can have a proper welcome.

I'm curious as to why you can't get disability through Social Security. I'm in Ca as well and have been considered disabled by Crohns (through Social Security) since 1995.

I think we should all be paid too. Having to pay when you have a chronic illness isn't right and you'll be hard pressed to find anyone on this forum who doesn't agree.

Welcome to the forum Ann.