Question about milk intolerance

[Devynnsmom]

Devynn has not had a drink of milk since we went milk free for her lactose testing back in Oct. This morning we were out of her Almond milk, so she decided to have a glass of milk. Within 20 min, she is on the toilet with diarrheahoo:. Would it be the milk that quick? Or does it sound like a coincidence? We will go back to avoiding milk.:yfrown: I have used milk in mashed potatoes and it doesn't seem to bother her. But honestly, the amount of milk I use is next to nothing.
EDITED to add- her lactose intolerance came back with a weird reading, but they said she is NOT lactose intolerant. But that she could have a milk sensitivity.

 

[lost kitten]

I'm the same, sensitive to milk but not lactose intolerant. I'd say it was probably the milk, sometimes I cheat and have some in my tea which always upsets me straight away. Strangely, a bit of milk in mashed potato is fine for me too... weird!

 

[muppet]

Yep milk intolerance can work that fast in my experience. With us it's not the lactose, either. Maybe the caseine? We're not sure.

I can get away with milk on occasion when I'm feeling well. Sarah can't at all.

 

[AZMOM]

Yes! It can happen that quickly. My non IBd kid can't drink milk. He has no problem with lactose (drinks high protein boost non stop that contains lactose) And it doesnt seem to affect him when I cook with it. If he drinks a glass of milk or has it on cereal, hes doubled over on the toilet within a short period of tome. Talked to the dietician and she said the issue is likely the milk protein. Apparently you can be fine with lactose and not the protein.

Claire tends to avoid milk but we haven't taken it away per se. She just says she "feels better" when she doesn't drink it.

J.

 

[jmckinley]

Ditto to what everyone has said, YES, it can happen that fast. It may be the milk protein that she has trouble breaking down and not the lactose. Ryan has this happen sometimes also. Maybe heating up (as in making mashed potatoes) breaks down the protein enough that she can tolerate it?

 

[Hope345]

I have read and heard a couple things about Crohns and lactose. Some believe Crohns is caused from the M.A.P. bacteria and feed off of Lactose, others do not believe that is true.

Of course this is completely separate from being lactose intolerant.

Our daughters Crohns seems to do much better without lactose.

 

[Charleigh]

Yep milk intolerance can work that fast in my experience. With us it's not the lactose, either. Maybe the caseine? We're not sure.

I can get away with milk on occasion when I'm feeling well. Sarah can't at all.

Can Sarah eat Cheese or yogurt? E's lactose test came back that he produces 0% lactase. I have avoided all dairy but he would really like to try cheese. I know that hard cheese contains zero lactose, but I am nervous to try it when he is doing so great. I wonder about the casein too.

 

[Devynnsmom]

Thank you all. This is exactly why I LOVE this forum!
jmckinley, I was thinking the same thing about the milk in the mashed potatoes. Devynn is anaphalactic to pumpkin if its raw. BUT if its cooked, she can eat it, but it gives her a bit of a stomache ache. Her allergy dr said something cooking it, changes everything.

 

[Jmrogers4]

I'm lactose intolerant and my younger son as well, luckily Jack doesn't have a problem with it but yep it can happen that fast at least with myself and son. Can always tell if something has diary in it that I'm not aware of because I will be in the restroom within a 1/2 hour. My son would have breakfast usually a bowl of cereal with milk at 7:30 and be in the restroom by 8:00.
I can eat hard cheeses like cheddar and yogurt, Breyers also makes a lactose free ice cream which is really good. I've always loved ice cream and would some times eat it knowing I would suffer (usually only if I was going to be home alone)

 

[my little penguin]

DETAILSREVIEWSNUTRITIONAL INFO
Increase protein intake with BOOST® HIGH PROTEIN drink. Each 8 fl oz serving has 15 grams high-quality protein to help maintain muscle, and 26 vitamins & minerals, including calcium and vitamin D to help support bone health. BOOST® HIGH PROTEIN drink provides 30% of the daily value for protein in one 8 fl oz serving.
Appropriate for these diets:
lactose-free*, gluten-free, low-residue, kosher, cholesterol-restricted
*Not for individuals with galactosemia

From:
http://www.nestlenutritionstore.com.../protein/boost-high-protein-nutritional-drink

High protein boost has milk protein but IS lactose free.
Which is why your son can drink it but not milk.

Milk allergy is very different from lactose intolerant.
Raw milk ( uncooked) the proteins have not been denatured.
When you cook or baked milk in things this denatures the proteins so the body is less likely to react in some individuals.

In order to be a true milk allergy it should be diagnosised by an allergist by patient history , rast ( blood test) and skin prick test.
An true food allergy ( IgE mediated) can turn into Anaphylaxis .

Lactose intolerance is different.
If she stopped drinking milk for a period of time your body will stop producing lactase .
So she will feel ill even if she is NOT truly lactose intolerant .
To get her body to make lactase again you need to drink a milk such as lactaid

http://www.lactaid.com/

For a while then slowly introduce milk.

Hard cheese ( cheddar and yogurt ) has little to no lactose.

I found out the hard way after avoiding milk for a while while breast feeding you can't just add milk back in you will get sick.

Ask her doc but that was what I was told to do and it has worked twice now .

( not a doc just a mom so ask yours )

 

[Devynnsmom]

Thank you mlp. Her dr told us it was up to us. The lactose test came back with a weird reading, but was negative. She had allergy testing (scratch test) which was also neg. We will have to keep an eye on it. She can eat cheese (cheddar), yogurt and mashed potatoes made with milk. But has not had a glass of milk, or ice cream (always bothered her) and take out pizza really bothers her.

 

[my little penguin]

Scratch test can be negative but blood can be positive and Vice versa

Plus reaction trumps test results every time for true IgE allergy
Signs of allergic reactions

See here
http://www.foodallergy.org/page/symptoms1

 

[Devynnsmom]

I'm going to ask them to run blood the next time we go. They usually poke her every time we have an appt anyways.

 

[my little penguin]

http://www.kidswithfoodallergies.info/

This answers basic food allergy questions as well as info about testing
Good luck

 

[Devynnsmom]

Thank you! I've bookmarked it. I'm reading through now.

 

[muppet]

Can Sarah eat Cheese or yogurt? E's lactose test came back that he produces 0% lactase. I have avoided all dairy but he would really like to try cheese. I know that hard cheese contains zero lactose, but I am nervous to try it when he is doing so great. I wonder about the casein too.

Sarah seems to do OK with cheese but trigger foods are always tough to judge because of delayed reactions and outside variables. I haven't tried yogurt with her. She never tested positive for lactose intolerance. I can't recall if she was tested at all, though. I'm sure she was, but my memory is terrible.

 

[jmckinley]

Devynnsmom,

You can try the lactaid pills to test if it's lactose intolerance. If she still has symptoms, it may be the proteins.

I kind of assumed that with IBD, the gut has a hard time breaking down and absorbing proteins, so the milk really irritates their symptoms. Ryan definitely tested positive for milk protein intolerance as a tot.

I read somewhere that casein is easier to break down, but there is much more of it in dairy than whey. There are some dairy foods that contain one and not the other, so you could through trial and error figure out which one is giving her trouble. Either way, you'd have to avoid milk if proteins are the problem. Maybe heating the milk breaks down the proteins. I wonder if you could heat milk then chill it and be able to drink it then?

 

[Devynnsmom]

Hmm.. thats a good question (heating and chilling) we had the lactose intollerance test done and it was negative. Then the scratch test for allergy, also negative. I think we will stick to having her drink almond milk. She likes it, and doesn't get sick. I use the vegan, lactose margarine for her as well. I use that in all our veggies etc.

 

[my little penguin]

Do not heat and chill milk !!!!!
If she has a milk allergy that is dangerous.
Baked milk in a cake etc... Is a much smaller amount and heated above a certain temp for a period of time to break down the protein.
Whole milk would expose your daughter to a much higher protein load.
Reactions can change quickly so one time it could be Gi related the next time trouble breathing or full blown anaphylaxis .
Please talk to your daughters allergist .

 

[Devynnsmom]

She had allergy testing and they said she was not allergic. I am going to ask for the blood allergy test, just to be certain.

 

[my little penguin]

10% of people have negative tests - skin and blood but still react .
If she is reacting then she is allergic regardless of test results
You need an allergist to help figure out based on her history if its a true allergy or something else .

Reactions trump test results every time.
That is why a food challenge done at a doctors office is the good standard for food allergies
The patient has to consume a serving of the offending food without reacting within 2 hours .

 

[AZMOM]

From:
http://www.nestlenutritionstore.com.../protein/boost-high-protein-nutritional-drink

High protein boost has milk protein but IS lactose free.
Which is why your son can drink it))

Okay I feel like an idiot I COMPLETELY explained myself backwards. EoE sons lactase test should be back any day. Talked to the doc about this last week at repeat biopsy.

I should stay off the forum when Im fried.

J.