Raw milk

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Hi, I'm new to the board.
I am interested in hearing from anyone who has added raw milk to their diet to help with Crohn's.

Thanks,
Peggy
 
Welcome.
I was given a specific warning about raw milk. That it's not good if you have a compromised immune system. I got this warning when i started Humira.
My doc seems to judge me and rightfully so that I need to warned about things in left field.
 
I tried it about a year ago. I didn't really give it enough time but I didn't think it was doing much at all. I think the smart thing to do is oust fluid milk from your diet completely. If you do start drinking raw milk make sure you get it from a trusted source.
 
I am going to go ahead and give it a try. It sure seems to be soothing my stomach.
The dairy is certified to sell raw, and they actually have to undergo many many more inspections than regular dairies that sell pasteurized milk. Since regular milk is heated to destroy germs, more germs are allowed before it is heated.
I'm sort of stubborn, so I'm gonna try this and just see.

I greatly appreciate the replies and I'll let you know how it goes.
 
Are you guys trying the raw milk to use in place of regular milk, or is there something about it being raw that is supposedly beneficial?

I was just diagnosed a few weeks ago so I'm just getting familiar with different things people use, I just have been drinking soy milk in place of regular. I like it and it doesn't cause pain for me.
 
I love soy milk too.
Actually, I grew up on pasteurized milk.
I started drinking soy milk years ago, because I thought it may have health benefits.
I had a mammogram this summer, # 17 for me because I'm 57, and they wanted to do a repeat. They also did a sonogram, and said to do a repeat in 6 months. They think all is well.

I have had some friends with breast cancer and some types are fed by estrogen.
So, I thought, well, I'lll switch back to organic milk, forgetting my doc said milk may aggravate Crohn's.

Having a flare this week, I started looking up new stuff on Crohn's. I had been reading about the benefits of raw milk and there was a lot of info about how it may be good for Crohn's as well. So, I'm giving it a try.
Google raw milk, and a great deal of info comes up. Also google raw milk Crohn's.
 
Hmm, yeah I think I am going to try some raw : ) How do you get yours? Do you have to go to a farm or do you think maybe an organic and vegan store would carry it?
 
You have to search your area and find a place that is certified to sell it. You have to go to a certified dairy.
They are pretty strict about who they let sell it, but that's good. Much safer.
 
Okay, yeah, I'll definitely look around and after I try it out for awhile I'll let everyone know if it does anything.
 
Crohn's.org/research/CDC is a good link to CDC. It examines the possible pathogen that seems to cause (maybe) crohn's. This pathogen, bacteria, is carried in pasteurized milk, for one. Some interesting studies going on.
Remember when it was discovered a bacteria caused stomach in many ulcers patients?
Wouldn't it be wonderful to find out Crohn's is caused by a bacteria?
 
From the Crohn's.org site:

Mycobacterium avium subspecies paratuberculosis (MAP), which causes Johne's Disease in many species of ruminants, is endemic in the food animal herds of almost every developed country. According to a study conducted by the USDA in 1996, in the United States, between 20% and 40% of dairy cattle herds are infected with MAP, resulting in economic losses of at least US$1.5 billion each and every year. (Results of a new USDA survey will be published in 2003 based on data collected in 2002. With Johne's disease increasing at an alarming rate, undoubtedly the new figures will be higher, perhaps significantly higher, than those in 1996.)

Since MAP is not classified as a human pathogen, meat, milk and other products from animals infected with MAP may be continually entering the human food chain. There is a wealth of evidence which appears to indicate that MAP is capable of surviving the food processing methods that we employ to protect us from disease, such as cooking and pasteurization. This scientific evidence is thoroughly reviewed and discussed in the MAP in Dairy Products, MAP in Beef Products, and Marshfield Clinic Study sections of our website.

MAP as a Food Safety Problem in the U.S.
Concerns about MAP and the scientific studies which suggest a connection to Crohn's disease in humans raise extremely grave concerns about food safety.

What are the chances that live MAP is in our food? It is an undisputed scientific fact that live MAP is excreted in the milk of infected cattle. Terrifyingly enough, scientific studies published in peer-reviewed journals have determined that MAP may be capable of surviving U.S. pasteurization standards. And, scientists have levied significant criticism at the one study that disagrees with the other studies, citing a misinterpretation of data by the scientists that conducted the study. (See the MAP in Dairy Products section for detailed information.)

As a bit of history, in 1993, the first scientific study was published indicating that MAP may survive pasteurization standards used in the U.S. This study was ignored by federal agencies responsible for food safety in the U.S.
 
Much later, in 1998 when University of Wisconsin researchers published their findings that MAP was able to survive current U.S. pasteurization standards, this study was again ignored by U.S. Federal Agencies cognizant of food safety. All in all, during the period 1993 through 2000 -- seven long years -- nine (9) scientific studies came in from the U.S. and around the world which suggested that MAP may survive current U.S. pasteurization standards/practices, and all of them were tossed to the side, ignored by cognizant U.S. Federal Agencies such as USDA (U.S. Department of Agriculture) and FDA (Food and Drug Administration).

In May of 2002, a study was published, entitled "Incidence of Mycobacterium paratuberculosis in Bulk Raw and Commercially Pasteurized Cows' Milk from Approved Dairy Processing Establishments in the United Kingdom" (Grant, I.R.; Ball, H J.; Rowe, M.T. Applied and Environmental Biology, May 2002, p. 2428-2435, Vol. 68. No. 5). Results from this study confirmed that MAP survives pasteurization standards used in the UK, pasteurization standards which equal or exceed those used in the U.S.

Regardless, despite MANY pleas from PARA since mid 1997, the USDA and FDA have not taken measures to exert the precautionary principle in determining whether indeed the food we give our children is free from contamination with MAP.

Other Countries Have Taken the Lead in Food Safety
While U.S. Federal Agencies ignored the scientific findings, other nations have stepped to the forefront in this issue.

In August of 1998, the Food Safety Authority in Ireland (FSAI) took dramatic measures to remove MAP from the food chain, by adopting the following measures:

Animals diagnosed with Johne's disease must be removed from the food chain
From the time an animal is diagnosed with Johne's disease until it is culled, milk will not be used (pasteurized or raw) for humans or calves
Additionally, in 1998 the United Kingdom took action. The United Kingdom's (UK's) Ministry of Agriculture and Fisheries (MAFF) undertook a nationwide study to investigate the microbiological quality of raw and pasteurized cows' milk in the UK. The preliminary findings warranted a larger study, which was published in May 2002 (Study by Grant, Ball and Rowe cited above.)

In early 2000 the European Commission/European Directorate General of Health and Consumer Protection (DG24) published a 76-page report requesting an "urgent research program" to deal with the connection between MAP and Crohn's disease, and to deal with the transmission of MAP to the human population through the food chain. Stating that "There are sufficient grounds for concern to warrant increased and urgent research activity to resolve the issue," the Commission recommends a wide rage of research that should be conducted as a matter of urgency.

In December of 2001 the UK Government adopted a comprehensive strategy to prevent human exposure to MAP. The Advisory Committee on the Microbiological Safety of Food (ACMSF), which advises the UK Government Food Standards Agency, approved a comprehensive program of measures aimed at eliminating MAP from retail milk, as purchased by consumers. As the ACMSF says in its strategy document, "The Agency has put to one side the question of whether or not there is a link between MAP and Crohn's disease. The Agency believes that precautionary action to reduce human exposure to MAP should start now and should not be dependent on waiting for the link to be proven."
 
Anybody out there take this antibiotic?


Abstract:
Background and Aim: 
The pathogenesis of Crohn's disease is unclear, but many studies suggest that luminal bacteria play an important role in chronic intestinal inflammation in patients with this condition. Clarithromycin is a macrolide antibiotic with immunomodulatory activity. The aim of this study was to evaluate the effect of clarithromycin therapy in Japanese patients with Crohn's disease. Methods: 
Fourteen patients with active Crohn's disease (12 with ileocolonic, one with colonic, one with small bowel type) were treated with oral clarithromycin 200 mg twice daily for 4 weeks. Patients who showed a clinical response within 4 weeks continued the therapy for up to 24 weeks. Four patients also received azathioprine. Clinical activity was assessed with the Crohn's Disease Activity Index (CDAI) at entry and at 4, 12, and 24 weeks after starting clarithromycin. Results: 
The mean CDAI score at entry was 343.5. Within 4 weeks, eight (57.1%) of the 14 patients showed clinical improvement, and five (35.7%) of the eight patients achieved remission. All of those eight patients continued clarithromycin therapy after 4 weeks, and six (42.9%) were in clinical remission at 12 weeks. Of the 14 total patients, four (28.6%) continued clarithromycin for more than 24 weeks, and have remained in remission. Patients who received azathioprine concomitantly had a better response to clarithromycin therapy. No severe side-effects were observed during the study period. Conclusions: 
This open label study showed encouraging results of clarithromycin therapy in Japanese patients with active Crohn's disease.
 
Hey Peggy! I too have been researching MAP and clarithromycin. I was wondering if anyone had taken it as well.

I just started drinking raw milk, but more specifically goat's milk as I'm lactose intolerant. I think it has helped me put on weight even in a current flare. I just signed up with a goat dairy in Colorado, and get a gallon a week now.

I am not on any medications though. If you are on a immunosuppresent, I think they advise against raw dairy.

Let us know how it goes! Good luck! Nikki
 
I only take Pentasa, which is for inflammation only, I believe.
I just got over a brief flare. Seems to be fine now. I am loving the raw milk.
Even thought this flare was brief, it lasted longer than the others, which were just a few days. This one was about 3 weeks, and I guess I needed it to realize I actually DO have a chronic disease. I don't let it get me down much.
I see my doc on Monday and am interested in hearing his latest updates on CD.

Thanks for writing!

Peggy
 
Thanks for the info on the SCD diet.

Just looked it up. Great stuff. I was totally ignorant.


Peggy



Hey Peggy! I too have been researching MAP and clarithromycin. I was wondering if anyone had taken it as well.

I just started drinking raw milk, but more specifically goat's milk as I'm lactose intolerant. I think it has helped me put on weight even in a current flare. I just signed up with a goat dairy in Colorado, and get a gallon a week now.

I am not on any medications though. If you are on a immunosuppresent, I think they advise against raw dairy.

Let us know how it goes! Good luck! Nikki
 

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