Really struggling, no end in sight, still no answers :(

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Really struggling, no end in sight, still no answers :( Updated with answers!

I must first apologize for not being around much. The depression has started to get to me and I haven't felt I could be supportive being as depressed as I have been.

My thread title basically says it all. Almost 2 years of fighting to find out the issue, and still no answers. My GI doc insists it's just IBS..It seems as though she just isn't listening to me. All she is focused on is the bloating and pain I get. Not the fact that I have mucus in my stool or the fact that though I can't see the blood, I can smell it. My food isn't digesting properly ( I can usually pick out supper from the night before in the toilet bowl). But it's "just IBS" apparently. I had a CT scan done on my small intestine on the 7th, but won't have answers until the 28th when I see her again. If nothing shows up on that, she is "done" with me because it's "obviously" not my digestive tract. I seriously don't know what to do. I have more bad days now, than good days with pain.

It's so hard to explain to people that I am sick. Honestly sick, but because I don't look like it it gets brushed off. Like when my mom-in-law asked my husband why I don't work. He explained it to her but of course my sis in law who has endometriosis works, so what is my problem? Hmm I don't know many employers that will allow you to just disappear to run to the closest available bathroom, randomly throughout a shift. Or having pain in my tummy that is so bad I can hardly stand somedays, nevermind actually working.

I try to put on a happy smile and look ok, but inside I am breaking down and having a harder and harder time dealing with everything. My husband bitching about me leaving bubbles in the sink after doing dishes. Well ****, I did the damn dishes, and it got to the point that I had to sit down, it just hurt. Just fricking rinse the sink instead of bitching :( I am trying to do my best and starting to feel I am failing :( A couple weeks ago I lost my temper and freaked the hell out, and what is the first question i get asked "have you been taking your pills?" Yes I have, and they aren't helping!!!!!!!!!!
 
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Aww sorry to hear you aren't doing well. I really hope the CT shows something so you can get good treatment. It is so hard to work with this, I work in a job where I am alone for half an hour (can't leave my till, go to the washroom etc) and it is horrible. If it was any more than half an hour there would be no way I could work. People don't get that sometimes we are in a horrible mood because we are in a horrible situation. Its very frustrating
 
sorry to hear you haven't found answers. having unsupportive people in your life is frustrating! I hate it when people put them being mean on others. I hope Tuesday comes soon for you to get answers.
 
UPDATE: Had a really bad attack last night, was on the toilet with a bucket for my face in case I puked. I honestly thought I was gonna die. Went and saw my family doc this morning, and he looked up the results of my CT scan on my small bowel. He looked quite serious and called me over to the computer to see. I apparently have about 10 cms of inflamed terminal ileum consistent with Crohn's. I see my GI doc again on Tues and hoping we can get some kind of treatment started
 
Can you switch GIs? I find my relationship with my GI is so important - there definitely needs to be some trust there. And it seems like yours doesn't trust you/listen to you.

Hopefully you can move forward now with some treatment or more focussed testing if required. Best of luck on Tuesday.
 
I am not sure about switching GI's. I will see how she is on Tuesday when I see her. If she continues to be apathetic with me, then I will be looking into switching
 
I know how u feel waiting for colonoscopy and MRI I have ibd but not sure which one I have good days and bad days more bad I have two jobs and been off work since Feb my husband says u lie in bed all week and uv been off work3 month he doesn't know what the pain is like my hip hurts pain down right side of stomach blood in stooles and back passage sometimes on toliet with loose and feel like been sick been getting what I thought was stomach bugs at least every month was in hospital in Feb thinking it was my gall bladder but not going the colonoscopy shows something and I get answer my husband doesn't understand and I suffer with fatigue do the slightest thing and exhausted. Just want to know then can tackle this my hairs dropping out ��
 
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