Remicade question?

[B-rad]

remicade question?

Hey folks, been on remicade for a year and a half, been great but the last eight weeks it's been like i never had it? has anyone found that it begins to work again without a dose escalation or rescue dose?? I am for another infusion this week.

 

[Lydia]

I wish I knew. I have been on it a year now too, and I notice I am getting more and more breakthrough symptoms, even inflammation in my esophagus. I know some people redo their loading dose when it stops working, or the go from 5 mg/kg to 10 mg/kg. Or they get it more often.

 

[BLM]

Hey B-rad,

I know that you can either increase the dose, or you ask for them to give you your treatment sooner than eight weeks...kinda like a super boost to the system instead of increasing your dose right off. If Increasing time between doses doesnt work, maybe a higher dose....or time to think of other options.

 

[littlefreebird]

if you start to flare up they may either reduce it to every 6 weeks or they may give you one double dose a one off and that usually does the trick. i used to find that i would become very ill 2 weeks before my infusion. unfortunatley the remission from remicade does not last forever and completley stopped working for me after 5 years, but i hope you get a while longer out of it as it is a great drug...definatley let them know when you go.
all the best! hannah

 

[B-rad]

thanx for the replies, kinda felt this was the general direction things were going in, but good to hear from those who have been there.

brad

 

[kekemonster101]

When I was on remicade it worked great at first, but then the time between infusions kept getting shorter and shorter. First it was 8 weeks, then 6.. then 4.. then eventually I made the switch to humira. Boy, the one good thing about humira is not having to sit in the hospital with an IV. Comfort of your own home