Remicade

[Amiliebelle]

How many of you are on remicade? and how is this working for you!
Ive just started. and is wondering about your stories!?

 

[Benjamin Miller]

@ all from Québec:
In which interval are you guys taking Remicade after the induction phase? Every 8 weeks or 6 - 8 weeks? I have no clear idea on that as I was not able to find any further information... Appreciated if one of you could help me out with a reliable source where I can find the information I am looking for

Thank you very much for your support!

Benjamin

 

[Manzyb]

Ben- typically they will start you on every 8 weeks after induction and then move them closer together if necessary. About a year and a half after I started the remicade infusions, I was moved up to every 4 weeks.

 

[49erlady]

I started Remicade last summer. I have loved it, felt great. However, after my last infusion I had some bleeding. My doctor is doing another colonoscopy to see what is going on. He is hoping I haven't developed a resistance to it. I was really hoping it would work for me....hope it works for you. I've met several people who have had it for many years and no problems

 

[east+coast+crohny]

I've been taking Remicade for just over a year. After about 6 months I was bumped to every 6 weeks. I find it works wonderfully for my pain but hasn't really regulated my bathroom visits....I'm still going to the bathroom (what feels like) 100 times a day, which I'm sure is also related to my eating habbits that I'm still struggling to manage.
The only side effects I experienced were dry scalp, nausea, weakness. I only had the nausea for the first 4-5 treatments and the dry scalp was managed by switching shampoos/conditioners. I still experience the weakness, specifically just very tired/run down afterwards. I usually plan for a pretty mellow day afterwards.
I know someone else that has just been taken off of it as it seems to have made his crohns symptoms worse, however I don't know the specifics on his situation, I know he wasnt eating well at all so it may have just been fighting against him.
Hope that helps Best of luck! Hope you have a good experience with it!