- Joined
- Oct 11, 2009
- Messages
- 905
Remission? Me? I can’t believe it!!!
I can’t believe this, but I might actually be in remission for the first time in my life. I don’t know what to do with myself.
I have had severe Crohns since I was 13 (diagnosed at 14), and I am 26 now. In all of that time I have never been in remission. For years I got enough relief from Remicade to build some sort of a life, but there hasn’t been a day that I didn’t have pain, or at very least feel pretty uncomfortable.
After 9 years, the Remicade had clearly stopped working, and I felt like my life was going to be over. My Dr tried me on Humera, but it didn’t work, so I just stayed on the Remicade even though it no longer gave me much relief. After another year of that, my Dr decided to try me on Cimzia. I was in a horrible flair and the Cimzia seemed to be worthless.
To make a long story short, it turns out that I had a really bad infection that had spread throughout my intestines and was causing me pain and was keeping the Cimzia from working. After finding a new Dr and the cause of my pain, I went on a weeklong bowl rest and took double duty antibiotics until the infection went away, then I tried again on the Cimzia.
So far, it has been working like magic. I have been feeling so good for the past few weeks, I am just in shock. I still haven’t been able to put back on much weight, but my appetite is back, and I am eating things that I haven’t eaten in years with no pain. I don’t feel like I am the same person I was just a few weeks ago. I really can’t believe the difference. I keep having all of this energy, and not having to worry about going to the bathroom literally 15 times a day (I am down to one!). I feel like super woman. It is funny to think that this must be how healthy people feel all of the time!
I have missed so much with this disease, I feel like a whole new world has been opened up for me. A big moment came for me last week when my friend was in town to work on my wedding dress (she is making it for me ). A few of us went to see a light display that they have at Christmas time here that is held at the botanical gardens. It is the type of event that I usually can’t go to or that I feel totally uncomfortable at because it is a lot of walking around outside with very little bathroom access. The whole time I was there, I kept waiting to feel that desperate feeling I get when I am away from a bathroom to long, but it never came. I felt good the whole time and I wasn’t even the first one to need to go home to rest. Only another person with Crohns would understand what a big moment that was for me.
I know it sounds like I am bragging a little bit, and I am, but I also hope that it gives everyone here a little bit of hope to know that someone on here is doing well. I know that this might all be temporary, but I am enjoying it while it lasts. I feel like the luckiest person alive. I really just don’t know what to do with myself. I feel like I just won the lottery.
Thank you all for reading this. Just like I don’t always feel like people understand what it feels like to be sick, I also don’t really think people who are healthy all of the time can contemplate how good it feels to just feel normal. I have been waiting for this moment for 13 years.
I can’t believe this, but I might actually be in remission for the first time in my life. I don’t know what to do with myself.
I have had severe Crohns since I was 13 (diagnosed at 14), and I am 26 now. In all of that time I have never been in remission. For years I got enough relief from Remicade to build some sort of a life, but there hasn’t been a day that I didn’t have pain, or at very least feel pretty uncomfortable.
After 9 years, the Remicade had clearly stopped working, and I felt like my life was going to be over. My Dr tried me on Humera, but it didn’t work, so I just stayed on the Remicade even though it no longer gave me much relief. After another year of that, my Dr decided to try me on Cimzia. I was in a horrible flair and the Cimzia seemed to be worthless.
To make a long story short, it turns out that I had a really bad infection that had spread throughout my intestines and was causing me pain and was keeping the Cimzia from working. After finding a new Dr and the cause of my pain, I went on a weeklong bowl rest and took double duty antibiotics until the infection went away, then I tried again on the Cimzia.
So far, it has been working like magic. I have been feeling so good for the past few weeks, I am just in shock. I still haven’t been able to put back on much weight, but my appetite is back, and I am eating things that I haven’t eaten in years with no pain. I don’t feel like I am the same person I was just a few weeks ago. I really can’t believe the difference. I keep having all of this energy, and not having to worry about going to the bathroom literally 15 times a day (I am down to one!). I feel like super woman. It is funny to think that this must be how healthy people feel all of the time!
I have missed so much with this disease, I feel like a whole new world has been opened up for me. A big moment came for me last week when my friend was in town to work on my wedding dress (she is making it for me ). A few of us went to see a light display that they have at Christmas time here that is held at the botanical gardens. It is the type of event that I usually can’t go to or that I feel totally uncomfortable at because it is a lot of walking around outside with very little bathroom access. The whole time I was there, I kept waiting to feel that desperate feeling I get when I am away from a bathroom to long, but it never came. I felt good the whole time and I wasn’t even the first one to need to go home to rest. Only another person with Crohns would understand what a big moment that was for me.
I know it sounds like I am bragging a little bit, and I am, but I also hope that it gives everyone here a little bit of hope to know that someone on here is doing well. I know that this might all be temporary, but I am enjoying it while it lasts. I feel like the luckiest person alive. I really just don’t know what to do with myself. I feel like I just won the lottery.
Thank you all for reading this. Just like I don’t always feel like people understand what it feels like to be sick, I also don’t really think people who are healthy all of the time can contemplate how good it feels to just feel normal. I have been waiting for this moment for 13 years.
When is the wedding? Awesome to think you can feel well for that!!!
