- Joined
- May 9, 2017
- Messages
- 215
Hi Everyone,
Just want to say I appreciate this site as an amazing resource! I have been on stelara for 2.5 years, and it has worked amazing. Over the last 2 months I have had a flare. Few months prior to the flare I was on augmentin for a sinus infection. Previously I responded very well to entocort, but now not much response. More response to Uceris, which shows that the Crohn's has probably spread to the large intenstine (previously ileocecal area). Previously on every 4 week dosing but recently was extending to every 6-7 weeks dosing and that is when the flare started. I am thinking that I have probably lost response to stelara. Interestingly my fecal calprotectin and ESR/CRP were normal. I am scheduled for an MRI this coming week. Any thoughts on repeat IV infusion of stelara? The only other thing that I can think of is maybe the stelara was stored improperly since sometimes the refrigerator door doesn't fully lock, so now I will make sure to use the stelara as soon as I receive it and make sure the fridge is not fluctuating in temperature. However, this has always been the case before and no previous problems.
Just want to say I appreciate this site as an amazing resource! I have been on stelara for 2.5 years, and it has worked amazing. Over the last 2 months I have had a flare. Few months prior to the flare I was on augmentin for a sinus infection. Previously I responded very well to entocort, but now not much response. More response to Uceris, which shows that the Crohn's has probably spread to the large intenstine (previously ileocecal area). Previously on every 4 week dosing but recently was extending to every 6-7 weeks dosing and that is when the flare started. I am thinking that I have probably lost response to stelara. Interestingly my fecal calprotectin and ESR/CRP were normal. I am scheduled for an MRI this coming week. Any thoughts on repeat IV infusion of stelara? The only other thing that I can think of is maybe the stelara was stored improperly since sometimes the refrigerator door doesn't fully lock, so now I will make sure to use the stelara as soon as I receive it and make sure the fridge is not fluctuating in temperature. However, this has always been the case before and no previous problems.