Salovum/SPCFlakes - incredible result

[Allistair H]

Hi All,

Since diagnosis (Crohn's) in my early twenties, I have looked around at forums etc but never joined one. I feel compelled to do so now to share my experience and if even one person hears this and acts, then great.

I have gone through the usual medical treatments and by and large I have been pretty good with short periods of being pretty bad. I exercise heavily (I used to compete in triathlons and cycling) and I guess this contributes to my general tiredness but I have been determined not to lose this bit of my life.

The bad episodes have been very bad and I had been on my monthly infusions with limited improvement. We have been gearing up for a section for a while now and I have been exploring every possible alternative as I am only just 30 and have a young family.

I found some clinical studies looking at anti secretory factor and Crohn's. In particular looking at a product (SPC Flakes) which normalised anti secretory factor levels in Crohn's patients. I'd never heard of it in the UK but the trials showed really good results in improving symptoms so I tracked down the company that developed them in Sweden and ordered some. I am delighted to say that after a couple of weeks I felt improvement and after about a month and a half I felt pretty good. I am now 7 months in and feel like I've been rebooted!

My gastro has taken the attitude of 'if it works, keep it up' and we are therefore not looking at section for the foreseeable which is such good news.

I started taking the Salovum and then moved to SPC Flakes. These can be taken with your meals. SPC is actually just like normal oats and I make mine into porridge. I haven't changed anything else in my lifestyle.

There is now a company in the UK that provides these.

I hope someone gets some benefit from this.

All the best
Ali

 

[nogutsnoglory]

First time hearing of this. I'm glad you feel it's helping you. I just did a quick read and it's too early for me to grasp.

 

[sunni725]

I wanted to let you know of my experience. My daughter is 22 years old and was diagnosed with Crohns when she was 7. She has tried all treatments that are FDA approved, including Stelara, but all have failed her with the exception of Remicade which became ineffective after a couple of years. She did not build up antibodies, it was starting to last less than 4 weeks. The doctor said she has a very "aggressive" form of Crohns and at some point we need to consider taking her colon out but we are trying ANY other options first. It is important to note that she has not been on any Crohns medications for quite some time as she has been battling various types of infections i.e. C-diff (which I am convinced was a result of ENTYVIO (vedolizumab)‎) but was finally cured by a fecal transplant after six months and then she had an extremely large colon abscess that made her septic and required surgery.

I read about the research on Salovum (special powdered eggs, not just any powered eggs) and its successful use in other countries for IBD and other conditions so decided to give it a try. I am amazed. Her mouth and throat was so full of ulcers she could barely swallow. After 3 days of using the Salovum, the ulcers started disappearing, quite a bit again absent any Crohns meds. On the 4th day she was scheduled for Remicade (doctor wanted to try again) and on the 5th day the ulcers were completely gone. It started with the Salovum and it appears the Remicade put the final touches on reducing her flare-up.

I found a pharmacy in Washington State that carries Salovum and they had it to me in two days. It is expensive, but they are working on getting my insurance to cover the cost as my doctor supports using this "medical food". The pharmacy is handling all the paperwork and said some U.S. insurance companies are covering the cost as long as her doctor will write a script, which she said she will do.

I wanted to share this as it truly has been nothing less than a miracle for my daughter, and it is a food, not a drug. Of course I believe again it is the combination of both the food and Remicade, but I am hopeful that this might help Remicade work for the long term as she will continue to eat it everyday.

 

[ronroush7]

I am glad for your success.