Scared and freakin out a bit.....

[BLM]

GOSH.....this SUCKS!!! UP, down, UP, down.....all over the place. So this past weekend has gotten bad for me again. I was looking forward to my 2nd Remicade but it was cancelled bc of my pink eye and my sinus infection. Saw my GP and got antibiotics and more meds....but here it is and Im miserable again. Im nauseated, my stomach is yelling loudly at me, Im so fatiqued and I HURT!! WHY?? WHY?? WHY?? When will this stop??? I have to complete my antibiotics and wait 5 days before another treatement, but Im scared....I cant possibly go another 10 days feeling like this again. Its been so nice to be free of this crap....and here it all comes again. Ive been on the toilet most of the day, and Im just feeling bad.....Sorry for the vent, Ive just be so sick for the entire year.....I dont know how much more of this I can take....I feel like Im going crazy!!

 

[Nica]

I feel for you. I know for me they only held back humira for 5 days when I had an infection. That five days was not fun. Make sure you tell your docs how you are feeling maybe they will have an idea for you.

Keep your chin up, it WILL get better!

 

[Jennifer]

I can't stand all the other sicknesses out there on top of already having a chronic illness. Its beyond unfair! I'm sorry you're going through this. I've got bronchitis or an pneumonia right now and am on antibiotics as well (was coughing up some blood, haven't heard what the x-ray showed) so that's why I haven't been on much lately. As suggested, make double sure your doctors know how badly you're feeling. Maybe they could discontinue the antibiotics and start them up again after your Remicade? Depends on what's worse I suppose. :/

 

[Mountaingem]

OMG I've been going through the same thing! I had viral pneumonia for 6 weeks and cancelled 2 infusions of Remicade and skipped 4 weeks of MTX.

Well, you know what happened-joints stiffened, diarrhea insued, vomitting-horrible! Finally the doctor caved and let me get Remi today because yesterday I could barely peel myself off the bathroom floor.

Vent away-this disease blows!